Table 2.

Examples of Family Members’ Narrative Comments, Grouped by Survey Burden Ratings

	Less Than Very Burdensome (ratings 0–7) n=60	Very Burdensome (ratings 8–10) n=18
Emotional responses to the survey	“Just brought back some unpleasant memories and some good ones.” “Not too much of a burden, just got me thinking about some very painful, sad memories.” “Brought back a lot of unhappy memories of his last hours.”	“Difficult to even think about until now.” “I cried every time I tried to complete this questionnaire.” “It’s difficult to relive those days.”
Logistical issues with survey completion	“Was not sure how to properly assess numbers on your scales.” “Just before the holidays was not a good time to receive this.” “Too soon after my dad’s passing.” “Because I didn’t know enough to be really helpful.”	“Because English is my second language.” “More time between the death of my loved one and this questionnaire would have been better and appreciated.”
Therapeutic or personal value from completion of the survey	“Thank you for the chance to let out all my feedback on mourning/losing a loved one.” “Actually helpful with the grief process.”	“I applaud your undertaking this survey – to gather data and going beyond anecdotal information. Thank you.”