Table 1.
Coping-Together study outcomes and measures
| Outcomes | Measures and Psychometrics |
|---|---|
|
Primary Outcome | |
|
Anxiety |
7-item HADS-Anxiety Subscale (patients and partners) [69] (α = .68-.93) [70] |
|
Secondary Outcomes | |
|
Depression |
7-item HADS-Depression Subscale (patients and partners) [69] (α = .67-.90) [70] |
|
Cancer distress |
15-item Revised Impact of Event Scale (patients and partners; α = .78-.96) [71] |
|
Quality of Life (QOL) |
35-item Assessment of Quality of Life – 8 Dimensions Scale (AQoL-8D; patients and partners) [72] |
| |
35-item Caregiver’s QOL Index-Cancer (partners) [73] |
|
Relationship satisfaction |
7-item Spanier Dyadic Adjustment Scale (patients and partners) [74] α = .89-.95) [75] |
|
Appraisal |
28-item Kessler Cognitive Appraisal of Health Scale (patients and partners [adapted]; α > .70) [76] |
| |
33-item Mishel’s Uncertainty Scale (patients and partners; α = .64-0.91) [77] |
| |
27-item Appraisal of Caregiving Scale (partners; α > .85) [78,79] |
| Self-efficacy |
17-item Cancer Self-Efficacy Scale (patients and partners; α = .97) [78] |
| |
12-item Communication and Attitudinal Self-Efficacy Scale for Cancer (CASE-Cancer; patients and partners [adapted]; α = .76-.77) [80] |
|
Dyadic coping |
37-item Dyadic Coping Inventory (patients and partners; α = .63-.84) [81] |
|
Individual Coping |
28-item Brief COPE measures 14 individual-level coping strategies (patients and partners; α = .60-.90) [82] |
|
Moderators* | |
|
Information obtained and information-seeking preferences |
25-item EORTC Quality of Life (QOL) – information module (patients and partners; α > 0.70) [83] |
| |
45-item Profile of Preferences for Cancer Information (PPCI) (patients and partners [adapted]) [84] |
|
Readiness for self-directed learning |
39-item adapted version of the Learning Preference Scale (patients and partners [adapted]) [85] |
| Problems experienced | 48-item adapted version of SupportScreen scale (patients and partners [adapted]) [86] |
Note. Brackets indicate if patients and/or partners will complete the measure. * Questionnaires measuring potential moderators were included in the survey to reflect those that would be included in a survey for a larger trial to comprehensively examine the feasibility of the methods. However, the pilot is underpowered and moderators will not be analysed.