Table 2. Characteristics of the 82 patients, total and by diagnosis: IPD, MSA, PSP.
| Characteristics | Value | IPD | PSP | MSA | Total |
| All | Total, n(%) | 50(61%) | 15(18%) | 17(21%) | 82(100%) |
| Gender | Men n(%) | 27(54%) | 7(47%) | 11(65%) | 45(55%) |
| Age | Mean(SD) | 67(8) | 69(11) | 67(8) | 67(9) |
| Median(min, max) | 68(40, 80) | 71(38, 86) | 68(51,81) | 68(38,86) | |
| Ethnic group | White UK | 35(70%) | 12(78%) | 17(100%) | 64(78%) |
| White Irish | 2(4%) | 0(0%) | 0(0%) | 2(2%) | |
| South Asian | 6(12%) | 1(7%) | 0(0%) | 7(8%) | |
| Black Caribbean | 3(6%) | 0(0%) | 0(0%) | 3(4%) | |
| Chinese | 1(2%) | 0(0%) | 0(0%) | 1(1%) | |
| Other | 3(6%) | 2(12.5%) | 0(0%) | 5(6%) | |
| Employment | Retired | 38(76) | 12(80%) | 11(65%) | 61(74%) |
| In employment or self-employed | 6(12%) | 0(0%) | 0(0%) | 6(7%) | |
| Unable to work (due to illness) | 6(12%) | 3(20%) | 6(35%) | 15(18%) | |
| Hoehn & Yahr* | 3 | 20(40%) | 2(13%) | 2(12%) | 24(29%) |
| 4 | 19(38%) | 4(26%) | 7(41%) | 30(37%) | |
| 5 | 11(22%) | 9(60%) | 8(47%) | 28(34%) | |
| Informal carer | No informal carer | 7(14%) | 1(7%) | 1(6%) | 9(11%) |
| Spouse/Partner | 36(72%) | 11(73%) | 12(71%) | 59(72%) | |
| Daughter | 4(8%) | 2(13%) | 2(12%) | 8(10%) | |
| Sibling | 2(4%) | 1(7%) | 1(6%) | 4(5%) | |
| All others | 1(2%) | 0(0%) | 1(6%) | 2(2%) | |
| Living arrangements | Lives alone | 10(20%) | 2(13%) | 2(12%) | 14(17%) |
| Lives with carer | 36(72%) | 13(87%) | 14(82%) | 63(77%) | |
| Other | 4(8%) | 0(0%) | 1(6%) | 5(6%) | |
| Baseline symptom and quality of life assessments Mean (Mean, SD) | EQ-5D | 0.47(0.59, 0.32) | 0.31(0.27, 0.40) | 0.29(0.26, 0.35) | 0.40(0.52, 0.35) |
| EQ-5D Health Status | 58.1(50.0,15.8) | 49.0(50.0,17.1) | 53.3(50.0,26.1) | 55.9(50.0,17.8) | |
| POS | 13.7(14.5,5.7) | 11.9(10.0,6.1) | 14.3(16.0,4.5) | 13.5914.5,5.6) | |
| POS-PP | 21.4(20.5,10.8) | 20.4(23.0,10.0) | 26.0(26.0,6.0) | 21.9(24.0,10.1) | |
| PDQ-8 | 43.2(46.0,20.1) | 35.8(41.5,18.4) | 47.6(50.0,16.4) | 42.8(46.0,19.4) | |
| HADS | 22.6(23,4.1) | 20.4(22.0,8.3) | 19.4(19.5,4.2) | 21.8(23.0,4.9) | |
| Follow-up status at study end | Still alive | 39(78%) | 7(47%) | 7(41%) | 53(65%) |
| Died | 3(6%) | 7(47%) | 8(47%) | 18(22%) | |
| Too ill | 1(2%) | 1(7%) | 1(6%) | 3(4%) | |
| Withdrew | 4(8%) | 0(0%) | 1(6%) | 5(6%) | |
| Lost to follow-up | 3(6%) | 0(0%) | 0(0%) | 3(4%) | |
| Duration of illness since diagnosis (years) | Mean(SD) | 11.9(5.8) | 4.6(2.7) | 5.9(4.0) | 9.3(6.0) |
| Median (min, max) | 5.8(1.0,25.0) | 2.7(1.0,11.0) | 4.0(1.0,14.0) | 8.0 (1.0, 25.0) |
*
chi-squared comparison between groups = 11.5 df = 4, p = 0.021.
Hoehn & Yahr stage meaning is.
3 Mild to moderate bilateral disease; some postural instability; physically independent.
4 Severe disability; still able to walk or stand unassisted.
5 Wheelchair-bound or bedridden unless aided.