Table 1.
QOL scores in patients with thyroid eye disease in visual, psychosocial and education/counseling subscales before and after steroid therapy
| Visual Limitations | Severely limited (%) | Mildly limited (%) | Not limited (%) | Missing response (%) | ||||
|---|---|---|---|---|---|---|---|---|
|
| ||||||||
| Before | After | Before | After | Before | After | Before | After | |
| Driving | 6 | 0 | 8 | 11.5 | 16 | 37.7 | 50.8* | 50.8* |
| Profession (regular job) | 9 | 0 | 27.9 | 18.0 | 52.5 | 78.8 | 4.9 | 3.3 |
| House chores (cooking, etc) | 3 | 0 | 27.9 | 19.7 | 52.5 | 75.4 | 4.2 | 4.9 |
| Moving around the house | 8.2 | 0 | 18 | 23.0 | 62.3 | 70.5 | 0 | 6.6 |
| Walking outdoors | 13.1 | 0 | 31.1 | 26.2 | 55.7 | 70.5 | 0 | 3.3 |
| Reading | 16.4 | 4.9 | 41.0 | 26.2 | 41.0 | 67.2 | 1.0 | 1.6 |
| Watching television | 11.5 | 3.3 | 39.3 | 59.0 | 49.2 | 36.1 | 0 | 1.6 |
| Hobby or pastime | 8.2 | 3.3 | 31.1 | 21.3 | 57.4 | 73.8 | 3.3 | 1.6 |
| Being hindered from doing something due to thyroid eye disease | 27.9 | 13.1 | 24.6 | 21.3 | 47.5 | 65.6 | 0 | 0 |
|
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| Psychosocial Limitations | Very much (%) | A little (%) | Not at all (%) | Missing response (%) | ||||
|
| ||||||||
| Before | After | Before | After | Before | After | Before | After | |
|
| ||||||||
| Change in appearance due to thyroid eye disease? | 55.7 | 23.0 | 36.1 | 31.1 | 8.2 | 45.9 | 0 | 0 |
| Do you feel being stared at in the streets? | 39.3 | 11.5 | 34.4 | 34.4 | 26.2 | 54.1 | 0 | 0 |
| Do you feel that people react unpleasantly because of your thyroid eye disease? | 11.5 | 3.3 | 32.8 | 19.7 | 54.1 | 75.4 | 1.6 | 1.6 |
| Do you feel that your thyroid eye disease has an influence on your self confidence? | 18.0 | 3.3 | 45.9 | 29.5 | 34.4 | 67.2 | 1.6 | 0 |
| Do you feel that your thyroid eye disease has an influence on making friends? | 19.7 | 1.6 | 31.1 | 16.4 | 47.5 | 82.0 | 1.6 | 0 |
| Do you feel socially isolated because of your thyroid eye disease? | 11.5 | 4.9 | 29.5 | 11.5 | 59.0 | 83.6 | 0 | 0 |
| Do you feel that you appear less often in photos than before you had thyroid eye disease? | 39.3 | 11.5 | 31.1 | 37.7 | 27.9 | 50.8 | 1.6 | 0 |
| Do you try to mask changes in your appearance caused by thyroid eye disease? | 32.8 | 18.0 | 23.0 | 8.2 | 27.9 | 73.8 | 0 | 0 |
|
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| Education and counseling | Very much (%) | A little (%) | Not at all (%) | Missing response (%) | ||||
|
| ||||||||
| Before | After | Before | After | Before | After | Before | After | |
|
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| Do you feel education and counseling concerning thyroid eye disease was adequate? | 24.6 | 57.4 | 39.3 | 21.3 | 27.9 | 21.3 | 8.2 | 0 |
*
No driving license