Table 1.
Instrument | Form | T0 – baseline | T1 – 6 months | T2 – 12 months | |
---|---|---|---|---|---|
Individual with suspected cognitive impairment |
|
||||
GPs’ MCI or dementia diagnosis |
1. GP asked to indicate dementia (and MCI) diagnoses of all study participants on a list |
|
|
X |
|
2. Extraction dementia (and MCI) diagnoses from medical records |
|
|
|||
Reference standard MCI or dementia diagnosis |
CAMCOG
[17] |
Interview |
X |
|
X |
Quality of life |
QoL-AD
[18] & EQ5D |
Interview |
X |
X |
X |
Mood |
MH5 (SF36)
[19] |
Interview |
X |
|
X |
Preference regarding diagnostic evaluation of suspected cognitive impairment |
Added questions |
Interview and informed consent PN |
X |
X |
X |
Informal caregiver |
|
||||
Quality of life |
MDS & EQ5D |
Questionnaire |
X |
X |
X |
Psychopathology |
GHQ12
[20] |
Interview |
X |
|
X |
Sense of competence to provide care |
SSCQ
[21] |
Interview |
X |
X |
X |
Potential effect-modifiers / confounders |
|
||||
Individual with suspected cognitive impairment |
|
||||
Sociodemography |
By proxy |
Interview |
X |
|
|
Morbidity |
By proxy |
Interview |
X |
|
|
Behavioural symptoms |
NPI
[22] |
Interview |
X |
|
X |
Informal caregiver |
|
||||
Sociodemography |
MDS |
Interview |
X |
|
|
Social support |
SSL12
[23] |
Questionnaire |
X |
|
X |
Duration and intensity of caring |
Added Q |
Interview |
X |
||
GP / Primary Care Practice |
|
||||
Age GP |
Added question |
Questionnaire |
|
|
|
Sex GP |
Added question |
Questionnaire |
|
|
|
Presence of practice nurse for elderly patients |
Added question |
Questionnaire |
|
|
|
Attitude to diagnosis and care for individuals with dementia |
Added questionnaire
[24] |
Questionnaire |
|
|
|
Percentage patients ≥ 65 years |
- |
Medical records |
|
|
|
Cluster size | - | Medical records |
CAMCOG = Cambridge Cognitive Examination, MDS = Minimal Dataset ZonMW, QoL-AD = Quality of Life in Alzheimer’s Disease, EQ5D = EuroQol utility questionnaire; 5 questions, MH5 (SF36) = 5 questions on Mental Health of the Short Form 36 questionnaire, GHQ12 = General Health Questionnaire, SSCQ = Short Sense of Competence Questionnaire, NPI = Neuropsychiatric Inventory, SSL12 = short version of the Social Support List.