Table 4.
Prenatal importance rankings with significant difference between parents and cardiologists
| Educational Information Prenatally | Parent Mean Ranking | Cardiologist Mean Ranking | p-value |
|---|---|---|---|
| Ability to describe the heart lesion | 9.52±1.1 | 8.84±1.5 | 0.02 |
| Explain the heart condition to another doctor | 8.70±1.8 | 7.76±2.0 | 0.03 |
| Location of lesion on a diagram of the heart | 8.68±1.9 | 7.16±1.9 | 0.001 |
| Reason why baby will need surgery at birth | 9.85±0.4 | 9.55±0.7 | 0.03 |
| When cardiac surgery would take place | 9.69±0.7 | 9.16±0.9 | 0.006 |
| Risks associated with neonatal surgery | 9.72±0.7 | 8.87±1.3 | 0.001 |
| Length of NICU stay | 9.47±1.0 | 7.00±1.7 | <0.001 |
| Whether baby will require future surgeries | 9.63±1.1 | 8.66±1.3 | 0.001 |
| Number of lifetime surgeries | 9.37±1.6 | 7.89±1.8 | <0.001 |
| Potential need for heart transplant later in life | 9.10±1.9 | 7.34±2.3 | <0.001 |
| NICU discharge medication name, dose, function, side effects | 8.97±1.7 | 7.18±1.9 | <0.001 |
| Why the baby has a heart condition | 8.72±6.5 | 6.45±2.2 | <0.001 |
| Probability of having another baby with CHD | 8.72±2.1 | 7.82±1.5 | 0.04 |
| Probability of baby having children of his/her own with CHD | 8.38±2.5 | 6.32±2.1 | <0.001 |
| Type of follow-up medical care needed | 9.36±1.4 | 8.74±1.2 | 0.04 |
| Whether child will have exercise limitations | 8.79±1.8 | 6.84±1.6 | <0.001 |
| Whether child can attend regular school | 8.60±2.1 | 7.55±1.7 | 0.02 |
| Potential difficulty in securing health and life insurance for adult with CHD | 7.51±3.0 | 5.58±2.4 | 0.003 |
| Option to not continue the pregnancy | 7.95±3.1 | 9.23±1.4 | 0.02 |
| Websites for more information about CHD | 8.72±1.9 | 7.47±1.9 | 0.006 |
| Books/pamphlets for information about CHD | 8.87±1.7 | 7.74±1.8 | 0.007 |
| How to find/talk to other families of children with CHD | 8.90±1.7 | 7.63±1.7 | <0.002 |
(10 = very important; 1 = unimportant)