Table 2.
Participant Descriptions
| Child’s Age at Time of FXS Diagnosis | Doctor Who Gave the FXS Diagnosis | Insurance at Time of FXS Diagnosis | Mother’s Highest Level of Education | Annual Household Income | Years of Diagnosis (Years Since Diagnosis at Time of Interview) | Known Family History of FXS Prior to Diagnosis | |
|---|---|---|---|---|---|---|---|
| Interview 1 | 5 | Neurologist | Medicaid | Bachelor’s Degree | $21,000–50,000 | 1997 (11) | No |
| Interview 2 | 1 | Pediatrician | Private | Bachelor’s Degree | $51,000–100,000 | 1999 (10) | No |
| Interview 3 | 7 | Geneticist | Private | Some Graduate Classes | >$100,000 | 2004 (5) | Yes |
| Interview 4 | 6 | Geneticist | Private | Advanced Degree | $50,000–100,000 | 1992 (17) | No |
| Interview 5 | 3 | Geneticist | Medicaid | High School Degree | $21,000–50,000 | 2005 (4) | Yes |
| Interview 6 | 3 | Neurologist | Private | Some Graduate Classes | >100,000 | 1998 (11) | No |
| Interview 7 | 1 | Geneticist | Private | Bachelor’s Degree | $51,000–100,000 | 2001 (8) | Yes |
| Interview 8 | 2 | Pediatrician | Private | Bachelor’s Degree | $51,000–100,000 | 2000 (9) | No |
| Interview 9 | 2 | Pediatrician | Medicaid | Some College | $21,000–50,000 | 2006 (4) | Yes |
| Interview 10 | 1 | Neurologist | Private | Advanced Degree | $51,000–100,000 | 2008 (2) | No |