Theme 8.1: Privacy/disclosure |
“I would not recommend blogging for those who do not feel comfortable sharing personal information.” |
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“Those with privacy concerns, such as health insurance tied to employment, need to be cautious. Those who would be harmed by public disclosure or being found by search engines.” |
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“Anything published on the Internet stays there forever.” |
Theme 8.2: Stage of disease (newly diagnosed) |
“Maybe when still new to the diagnosis and searching for answers.” |
Theme 8.3: Mental Illness |
“If you are very unwell (mentally) and might say something that could ‘trigger’ someone else to do something harmful toward themselves or others, you should either not write until you are a bit better or censor what you write.” |
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“Anyone with a mental illness who cannot handle negative comments should not blog.” |
Theme 8.4: Stigma of illness |
“When people are uncomfortable talking about their conditions. There are also regional issues, stigmas to think about. If you don’t like being found with a Google search of the condition and your name, don’t blog.” |
Theme 8.5: Emotional vulnerability
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A. Discomfort/stress |
“If it would make the person feel uncomfortable sharing medical information or if it would stress them out too much.” |
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“If it hurts someone else.” |
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“When patient is too weak or under strong emotional distress.” |
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B. Anger |
“Don’t blog when angry. You’ll say things you’ll regret.” |
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“Express anger aimed at another individual.” |