Table 1.
Prominent themes
| I. Ethical considerations with respect to non-therapeutic research | |
|---|---|
| · Autonomy |
|
| · Respect for persons |
|
| · Beneficence |
|
| · Non-maleficence |
|
| · Discrimination (e.g. insurance and employment) |
|
| · Confidentiality |
|
| · Public good |
|
|
Patient-centered issues | |
|
Facilitators |
Barriers |
| · Communication |
· Negative research culture |
| · Informed consent is a continuous process |
· Vulnerability of patient |
| · Differing opinions | |
| · Research nurse |
· Psychosocial issues |
| · Individual contact |
|
| · Timing |
|
| · Family dynamics and social support |
|
|
II. Health professional issues | |
|
Facilitators |
Barriers |
| · Doctor-patient relationship |
· Doctor-patient relationship |
| · Teamwork |
· Distinction between care and research |
| |
· Time constraints |
| |
· Conflict of interest |
| |
· Lack of awareness |
| |
· Education and training |
| |
· Research ethics boards (REB) |
| · Funds | |