1
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Knowledge/awareness
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Believe that stillbirth happens more in low-resource countries.
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Believe that stillbirth happens more in low-resource countries.
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Never expected this to happen and were shocked and unprepared.
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NICUs are better prepared to handle deaths.
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Wanted to know the reason but no one could tell them the reason.
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Except for obvious causes (cord/abruption), doctors often don’t know why stillbirths happen.
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2
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Hospital – environment
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Being surrounded by reminders and sounds of healthy deliveries causes feelings of humiliation and anger on top of grief.
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Believe that efforts are made to offer privacy and sensitive support.
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Overwhelmed, adding insult to injury, by having to explain (sometimes repeatedly) what happened to unprepared staff.
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Accustomed to handing off patients (mother and infant) to a pediatrician or neonatologist.
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Appreciated the presence of physicians, social workers, and nurses who provided support to parents in grief and bereavement.
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Most feeling unprepared to shift from role of physician to counselor.
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3
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Hospital – care & communication
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Wanting physicians to engage them in their sadness and grief.
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Wanting to suppress/hide sadness and grief to focus on finding out ‘why’ for the patient.
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Feeling shut out, not knowing.
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Wanting to figure out the cause through tests or autopsy.
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Wanting answers but not strongly blaming self.
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Wanting to reassure mothers in particular not to blame themselves.
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Holding someone responsible: Some blame the hospital or physician for not preventing the stillbirth.
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Some worried about being blamed.
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4
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Rituals around death
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Holding, bathing, dressing, photos, hand and footprints are important and preserve memories. However, should be offered, not forced.
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Some offered death kits similar to those used in NICUs; others felt unfamiliar with what a parent might want and would defer to nursing staff.
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5
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Post-stillbirth care
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Described grief as ambiguous—wanting to remember deeply sad memories.
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Focused on reassurances about the future. Referrals to social work but few referrals to mental health professionals for follow-up care.
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Hunger for information on causes, prevention, and support resources. Few were offered this in hospital.
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Typically make referrals to nursing or social work to offer information.
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Parent support groups and online groups helpful—someone who has gone through stillbirth and come out on the other side.
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Not aware of these resources.
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6
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Post-stillbirth communication
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This baby mattered to us and another baby will not replace her or make our feelings go away.
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It is important to reassure mothers they did nothing wrong and can have another baby.
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7
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How stillbirth is perceived
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A stillbirth is the death of a child.
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A stillbirth is not as severe a loss as the death of a neonate.
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8 |
Bereavement, remembrance, & recovery |
We want to openly remember our baby as part of our family. |
It is important to try to help them realize they have done nothing wrong and can go on to have another child. |