Table 5.

Reasons for an unsure response to participating in a genetic research study

Selected responses	n (%)
I don’t have enough information about genetic research to make a decision	24(56 %)
My genetic information may not be stored securely	17(40 %)
My genetic information may be made publicly available	15(35 %)
My genetic information may be released to my insurance company	10(23 %)
My genetic information may be released to current or potential employers	9(21 %)
Participating would go against my religious beliefs	6(14 %)
I don’t want to give or I don’t want my child to give another blood sample	5(12 %)
I may learn that I or my child has a genetic condition that I really don’t want to know about	4(9 %)
My spouse or significant other would not approve	3(7 %)
I don’t want to give or I don’t want my child to give a saliva or cheek swab sample	1(2 %)

n = 43