Table 2:
Reason | Description | Examples | Frequency |
---|---|---|---|
A. Problem Reasons | |||
Problem in list | Includes a problem that is in the list of values (should use problem field) | “breast cancer at 70” “colon, age 75” | 187 (37.4%) |
Missing problem | Includes a more specific or general problem, or problem that is not in the list of values | “brain cancer” “throat, deceased 1963 age 60's” | 200 (40.0%) |
Multiple problems | Lists multiple problems | “skin, ovarian” “uterine, breast, kidney cancers” | 71 (14.2%) |
B. Relation Reasons | |||
Relation in list | Includes relation that is in the list of values (should use relation field) | “Prostate, father” “skin cancer, grandmother” | 34 (6.8%) |
Missing relation | Includes a more specific or general relation, or relation that is not in the list of values | “great grandmother ovarian” “lymphoma, cousin” | 41 (8.2%) |
Multiple relations | Lists multiple relations | “SISTERS, AUNT” | 21 (4.2%) |
C. Onset Age Reasons | |||
Onset age – exact | Includes a specific onset age (should use age of onset field) | “dx'd age 65” “onset age 60” | 87 (17.4%) |
Onset age – fuzzy | Includes an estimated onset age | “diagnosed in his 70s” “elderly onset” | 45 (9.0%) |
Onset date | Includes onset or diagnosis date | “diagnosed 10/2011” | 1 (0.2%) |
Multiple onset ages or dates | Lists multiple onset dates | “bilateral, age 37 then 45 in opposite breast” | 2 (0.4%) |
D. Other Reasons | |||
Living status | Indicates living status of family member (should use status field) | “diagnosed at 62 Still living” “died of stomach cancer” | 80 (16.0%) |
Deceased age | Includes exact or estimated age of death | “aunt (died @ 90 years)” | 60 (12.0%) |
Deceased date | Includes exact or estimated date of death | “throat, deceased 1963 age 60's” | 5 (1.0%) |
Ambiguous age | Includes an age but unclear if it is age of onset or death | “9/2004, sister age 46” “8/6/99, brother 60” | 2 (0.4%) |
Ambiguous date | Includes a date but unclear if it is for onset or death | “10/31/97”, “4/2002” | 16 (3.2%) |
Negative history | Specifies negative history for specific problem | “no breast or colon cancer” | 0 (0.0%)* |
Certainty | Indicates uncertainty about a particular problem, relation, or age | “? bone or thyroid cancer” “uncertain what kind” | 40 (8.0%) |
Other conditions/findings | Includes conditions or findings other than type of cancer | “laryngeal, heavy smoker” “cervical cancer; obesity” | 24 (4.8%) |
Procedures/therapies/tests | Includes reference to procedures, therapeutics, and/or tests | “breast cancer – lumpectomy” “pat 1st cousin, BRCA neg” | 20 (4.0%) |
Other | Any other information included | “prostate metastisized”, “x 3”, “lymphoma remission” | 31 (6.2%) |
No occurrences in the sample of 500 entries