Table IV.

Pain Interference: Participants’ Understandings and Experiences (Examples)

Age (years)	Sex	Diagnosis	Quote
Pain interference
8	F	Pain	(Headaches affect your activities?) No, but normally I would just sit at my desk instead of working.
9	F	JIA	If I play outside and the pain is causing me, you know, if I can’t move my hand as much as I was before, then I have to stop playing for a while and it usually just takes about a minute for the pain to go away …
10	F	JIA	You know the scales to one through ten, how their faces look? I’ll look like one of those when I start hurting … but I’ll still be in pain, I’ll just start leaving it alone and not trying to do anything. Sometimes I’ll take pills like Tylenol … to get it to stop hurting.
12	F	JIA	(Disclose your pain?) I might tell peers what I have gone through, just to give them a sense that it wasn’t a walk in the park. Of course it wasn’t a walk in the park … I couldn’t walk in a park! But I wouldn’t make them feel sorry for me. That’s one of the least things I want people to do.
12	F	Pain	I don’t get as much sleep. Because it’s hurting at night and then it’s hard to get to sleep, and then it’s hard to wake up in the morning. So it’s caused me to be more tired. I try not to (act differently) unless it’s really, really bad. Then I have to stop what I’m doing and … take a break.
12	F	Pain	Sometimes I just don’t act like myself and stuff. I wouldn’t be as talkative to (mother) and stuff. Or when I’m in pain I get more irritable and stuff and sometimes I get snappy and stuff.
15	M	JIA	It makes me a little more tired. Which I think probably makes me a little more irritable, easy to snap. Get upset with something. But I try not to make it too obvious. I’d have to say something normally.
16	F	JIA	Not all my friends know that I have arthritis. I guess I would just say that my hand hurts, but I mean at school, that could just mean I’m writing too much. I just don’t want people judging that I’m 16 with arthritis.

Note. JIA = juvenile idiopathic arthritis.