Table 4.
Needs for Additional Professional Support | Stages of Dementiaa | Total N=1494 |
p | ||
---|---|---|---|---|---|
< 1 Year N=89 |
1-4 Years N=744 |
≥ 4 Years N=661 |
|||
Advice | |||||
- I need to know what to do when the person with dementia is afraid, angry or confused | 21.3 | 25.0 | 21.2 | 23.1 | 0.22 |
- I need to know how to deal with the apathy of the person with dementia | 14.6 | 18.4 | 15.2 | 16.7 | 0.23 |
- I need to learn how to cope with changes in the behavior of the person with dementia | 16.9 | 15.7 | 11.5 | 13.9 | 0.05 |
- I need to know how to undertake activities with the person with dementia | 18.0 | 13.6 | 9.5 | 12.1 | 0.01 |
- I need to know how to deal with aggression of the person with dementia | 6.7 | 11.8 | 12.6 | 11.9 | 0.28 |
Information | |||||
- I need information about the availability of professional support in the region | 27.0 | 19.4 | 14.5 | 17.7 | 0.00* |
- I need information about the legal regulations/allowances in case of admission to a nursing home or home for the elderly | 12.4 | 14.8 | 14.7 | 14.6 | 0.83 |
- I need information about the progression of dementia | 15.7 | 14.4 | 10.5 | 12.7 | 0.06 |
- I need information about the support offered by nursing homes | 16.9 | 11.0 | 10.2 | 11.0 | 0.17 |
Emotional Support | |||||
- I need someone to take away the feeling that I am the only one looking after the person with dementia | 14.6 | 12.9 | 14.4 | 13.7 | 0.69 |
- I need someone to look after the person with dementia now and then | 7.9 | 14.7 | 12.1 | 13.1 | 0.12 |
Practical Support | |||||
- I need support with chores in and around the house (e.g. repairs, garden) | 12.4 | 11.3 | 12.6 | 11.9 | 0.75 |
The questionnaire addressed a total number of 59 needs for additional support. This table reports the needs most frequently mentioned by informal caregivers.
Difference between the stages of dementia is statistically significant (chi-square test, p < 0.01)
Evaluated by the informal caregiver.