Table 4.

Helpfulness and Meaningfulness of the Intervention for Parents of AYA.

Core Theme 1. Myriad of intervention mechanisms to alleviate parent suffering
Theme	Subtheme	Data Sample Illustrative of Themes and/or Subthemes
Parent emotional experience – relief, gratitude, awe, happiness	positive emotional experience b/c of increased openness of AYA	“I feel so much better b/c I feel that was part of her depression. Just being able to talk about it is a great thing that she has been able to face her illness. That has helped her quite a bit.” (Mom of 15 year old female)
	relief/happiness as AYA has positive experience with study to buffer distress	“I said I’m so happy. That gave me a little more of ‘yes he’s doing this and this is better. He’s doing good now.’ ” (Mom of 14 year old male)
	therapeutic connection with emotions while viewing video
Parents gain insights	about AYA thoughts and emotions about self	“….it helped her to bring out her emotions but it helped me to understand her emotions and it also helped me to see the value that she had placed in different people.” (Mom of 15 year old female)
Parent/family gain acceptance leading to improved well-being
Parent trust in study personnel relieved anxiety		“I knew that at least he was going to have company when the study people were there to talk with. That gave me ease, especially in SCT b/c you know who that person is who was going to walk in the door.” (Mom of 21 year old male)
Core Theme 2. AYA’s DVD as a legacy and source of insight, pride, and joy for parents
Theme	Subtheme	Data Sample
Viewing DVD helped parents gain insight into:	AYA thoughts, emotions, strengths, growth Self	“I smiled the whole time and probably cried a little bit, you know, just because it, like I said because it was him.” (Mom of 15 year old male)
DVD lasting documentation of SCT experience	lasting legacy	“…this could be the last record we have of him. In that regard, it was a big deal. It’s definitely something we’ll always keep.” (Mom of 22 yr. old male)
		“It showed how much she cared about me and about how much she cared about everything and how she hated being in the hospital. It showed everything she was going through at that period of time.” (Mom of 14 year old female)
DVD source of joy and pride for parent and AYA		“When she brought the DVD and played it she was just be-bopping and singing with it. We had some of the nurses come in and a couple of the other parents that we had met on the floor. It was just so exciting. Then we took the video and sent it home with the teacher. She took it back and played it for the girls.” (Mom of 15 year old female)
Showing/sharing DVD facilitated connection b/t AYA and others	Family	“I think the whole DVD was just to explain the most important things in her life were her family and her friends.” (Dad of 21 year old female)
	health care providers friends	“I’ve watched it a couple of times. If a friend of mine comes over we’ll watch it. My boyfriend, he’s watched it because he never came up to the hospital and visited, he couldn’t handle it. So I brought it home for him to see her while she was in the hospital.” (Mom of 14 year old female)
Core Theme 3. TMV intervention as a valued way for parents to respect and support AYA privacy and independence
Theme	Subtheme	Data Sample
Parents understood, valued, supported AYA’s need for privacy	privacy to develop DVD	“I was in and out. I wasn’t really there the whole time. I let them just do whatever they needed to do. I gave them their time alone basically.” (Mom of 17 year old male)
	privacy and respect for decisions related to sharing DVD
Parents understood, valued, supported AYA’s need for independence	honoring need for independence and ownership of project	“….I really didn’t participate in it at all. I kind of stepped back and let her do her own thing, her own project, her own searching.” (Mom of 16 year old female)
	assumed a supportive role hat was driven by AYA
Honoring independence and privacy meant parents unaware of some TMV activities		“He kept it pretty, pretty hush. He didn’t, he didn’t tell me too much. He wanted me to be surprised.” (Mom of 15 year old male)
TMV means to meet AYA needs when parents not able