Table 1.
Area for development | Number of votes (%); n = 13, six votes per person |
---|---|
Commitment to research | 16 (20.5) |
Regulatory body education | 12 (15.4) |
New endpoints in clinical trials | 11 (14.1) |
Healthcare and social care; personalized care | 9 (11.5) |
More therapy options | 9 (11.5) |
MS centers of excellence | 7 (9) |
Informed, shared decision-making | 4 (5.1) |
Better communication between stakeholders | 3 (3.8) |
Cost and reimbursement | 3 (3.8) |
Drugs with better risk:benefit profiles | 2 (2.6) |
Early treatment | 1 (1.3) |
Patient engagement and enablement | 1 (1.3) |
Each voting group member had a total of six votes. Multiple votes for a single topic were allowed. The group that attended the second meeting and were eligible to vote included eight neurologists, one pharmacoepidemiologist/pharmacoeconomist, three MS group/society members, and one consultant with a long-standing relationship with the MS community in Canada