Table 2.
Congruence in spiritual wellbeing of adolescent (n=38)/surrogate (n=38) dyads. Weighted Kappa for FACIT-SP-EX-4 Items
| Question stem | Dyadic congruence1 | Weighted Kappa | Standard Error | Z | Probability >Z |
|---|---|---|---|---|---|
| n %Agreement | |||||
| I have a reason for living. | Not at all/a little bit 0 Somewhat 0 Quite bit/Very much 37 97.37% |
0. 0000 | 0.0000 | 0.00 | 0.5000 |
| My life lacks meaning and purpose.2 | Not at all/A little bit 37 Somewhat 0 Quite a bit/Very much 0 97.37% |
0.0000 | 0.0000 | 0.00 | 0.500 |
| Do you believe HIV is a punishment from God.3 | Not at all/A little bit 32 Somewhat 0 Quite a bit/Very much 1 93.24% |
0.4089 | 0.1344 | 3.04 | 0.0012 |
| I feel a sense of harmony within myself. | Not at all/A little bit 2 Somewhat 1 Quite a bit/Very much 25 82.89% |
0.3825 | 0.1247 | 3.07 | 0.0011* |
| I have trouble feeling peace of mind. | Not at all/A little bit 26 Somewhat 1 Quite a bit/Very much 0 81.58% |
0.1104 | 0.1185 | 0.93 | 0.1758 |
| I find comfort in my faith or spiritual beliefs. | Not at all/A little bit 0 Somewhat 0 Quite a bit/Very much 20 64.47% |
0.0135 | 0.0897 | 0.15 | 0.4404 |
| I find strength in my faith or spiritual beliefs. | Not at all/A little bit 0 Somewhat 0 Quite a bit/Very much 19 64.47% |
0.0707 | 0.0835 | 0.85 | 0.1986 |
| I know that whatever happens with my (my teen's) illness, things will be okay. | Not at all/A little bit 1 Somewhat 2 Quite a bit/Very much 12 76.32% |
0.0579 | 0.1295 | 0.45 | 0.3275 |
| I feel forgiven for any harm I may have ever caused. | Not at all/A little bit 0 Somewhat 2 Quite a bit/Very much 22 72.37% |
0.0849 | 0.1016 | 0.84 | 0.2018 |
| I feel a sense of appreciation for the beauty of nature. | Not at all/A little bit 0 Somewhat 1 Quite a bit/Very much 25 78.95% |
0.0760 | 0.0541 | 1.41 | 0.0800 |
| I feel connected to a higher power (or God). | Not at all/A little bit 0 Somewhat 1 Quite a bit/Very much 22 69.74% |
0.0500 | 0.0849 | 0.59 | 0.2780 |
| I feel connected to other people. | Not at all/A little bit 1 Somewhat 1 Quite a bit/Very much 17 68.42% |
0.0194 | 0.1217 | 0.16 | 0.4368 |
| I feel hopeful. | Not at all/A little bit 0 Somewhat 0 Quite a bit/Very much 31 86.84% |
-0.440 | 0.1073 | -0.41 | 0.6589 |
| My life has been productive. | Not at all/A little bit 0 Somewhat 0 Quite a bit/Very much 27 81.58% |
- 0.1083 | 0.1210 | -0.90 | 0.8146 |
| I feel peaceful. | Not at all/a little bit1 0 Somewhat 0 Quite a bit/very much 21 75.79% |
-0. 0 165 | 0.1105 | -0.15 | 0.5592 |
| I feel a sense of purpose in my life. | Not at all/A little bit 0 Somewhat 0 Quite a bit/Very much 31 85.53% |
-0.0296 | 0.0674 | -0.44 | 0.6696 |
| I am able to reach down deep into myself. | Not at all/A little bit 0 Somewhat 1 Quite a bit/Very much 19 69.74% |
-0.0210 | 0.1013 | -0.21 | 0.58222 |
| My (my child's) Illness has strengthened my faith or spiritual beliefs. | Not at all/A little bit 1 Somewhat 2 Quite a bit/Very much 12 47.37% |
-0.0644 | 0.1090 | 0.59 | 0.7228 |
| I feel loved. | Not at all/A little bit 0 Somewhat 0 Quite a bit/Very much 31 89.47% |
-0.0704 | 0.1245 | -0.57 | 0.7142 |
| I feel love for others. | Not at all/A little bit 0 Somewhat 0 Quite a bit/Very much 31 86.84% |
-0.0326 | 0.0743 | -0.44 | 0.6696 |
| Throughout the course of the day, I feel a sense of thankfulness for my life. | Not at all/A little bit 0 Somewhat 0 Quite a bit/Very much 27 84.21% |
-0.0459 | 0.0757 | -0.61 | 0.7276 |
| Throughout the course of the day, feel a sense of thankfulness for what others bring to my life.2 | Not at all/A little bit 0 Somewhat 0 Quite a bit/Very much 31 86.84% |
0.0000 | 0.0000 | - | - |
| I feel compassion for others in the difficulties they are facing. | Not at all/A little bit 0 Somewhat 0 Quite a bit/Very much 28 78.95% |
-0.0483 | 0.0910 | -0.53 | 0.7020 |
| I am able to forgive others for any harm they have ever caused me. | Not at all/A little bit 0 Somewhat 1 Quite a bit/Very much 15 53.95% |
- 0.1626 | 0.1129 | -1.44 | 0.9251 |
Note: Congruent means that the adolescent/surrogate dyad or pair gave identical responses to the question regarding their own spirituality. Responses that were not congruent are not shown in this table and accounts for why the numbers do not add to 38 dyads for each response.
Kappa: 0.61-0.80 = Substantial agreement
0.41-0.60 = Moderate agreement
0.21-0.40 = Fair agreement,
0.00.0.20 = Slight agreement,
Less than 0.0 = Poor agreement
Numbers to not add to 38 dyads for each item as incongruence data are not shown in this table, only congruence. Responses were clustered from a 5-point Likert scale to a 3-point Likert scale for this analysis, because of empty cells due to the high proportion of families who scored in the highly spiritual range, creating ceiling effects.
Kappa statistics could not be obtained for some questions due to a lack of variance in the responses.
This item was added for this study and is not part of the FACIT-SP-EX-4.