Table 2.

Distribution of responses in the two surveys

Question	N =1,041 N (%)
Beliefs about Genetic Research
1. Do you feel it is an important gift to society when a person takes part in medical research
Yes	885 (83.02)
Maybe	156 (14.64)
No	25 (2.35)
2. How do you feel about genetic research
Approve	875 (82.24)
Unsure	180 (16.91)
Disapprove	9 (0.86)
3. How would you feel about your genetic data being taken from you blood sample (your identity would not be known) and being used in medical research
Approve	751 (70.79)
Unsure	253 (23.84)
	57 (5.37))
Personal privacy
4.Would you be willing to join the BioGeneBank *
Yes	556 (52.72)
Not sure	364 (34.36)
No	137 (12.94)
5. Reasons for refusal among those who answered not sure/no:
Having an extra tube of blood drawn	66 (14.22)
Keeping information private and secure	332 (74.02)
Interfering with nature by taking part in genetic res.	49 (11.6)
6. Would you be willing to provide extra info: about your daily habits
Yes	586 ( 56.95)
Most likely	275 (26.68)
May be	122 (11.83)
No	47 (4.54)
6a. about your family’s health
Yes	682 (66.38)
Most likely	211 ( 20.5)
May be	89 (8.66)
No	46 (4.46)
Informed consent process
7. Would you be comfortable if an “opt-out” approach was used in the BioGene Bank?
Yes	461 (44.37)
Most likely	197 (18.96)
Maybe	166 (15.97)
No	215 (20.71)
8a. Uncomfortable enrolling in a research without having the study explained to#
Yes	376 (61.94)
Probably	122 (20.11)
May be	64 (10.52)
No	46 (7.43)
8b. Concerned about being enrolled in a research without my knowledge#
Yes	459 (74.77)
Most likely	83 (13.48)
May be	39 (6.44)
No	33 (5.33)
8c. Worried that other kinds of research would be done that I don’t approve of#
Yes	384 (62.18)
Probably	89 (14.42)
May be	76 (12.45)
No	68 (10.96)

*this question was formulated slightly differently in the 2011 questionnaire; the statement “in the future” was added to the question.

^#excluding those who answered ‘yes’.