Table 2.
Question | N =1,041 N (%) |
---|---|
Beliefs about Genetic Research |
|
1. Do you feel it is an important gift to society when a person takes part in medical research |
|
Yes |
885 (83.02) |
Maybe |
156 (14.64) |
No |
25 (2.35) |
2. How do you feel about genetic research |
|
Approve |
875 (82.24) |
Unsure |
180 (16.91) |
Disapprove |
9 (0.86) |
3. How would you feel about your genetic data being taken from you blood sample (your identity would not be known) and being used in medical research |
|
Approve |
751 (70.79) |
Unsure |
253 (23.84) |
|
57 (5.37)) |
Personal privacy |
|
4.Would you be willing to join the BioGeneBank * |
|
Yes |
556 (52.72) |
Not sure |
364 (34.36) |
No |
137 (12.94) |
5. Reasons for refusal among those who answered not sure/no: |
|
Having an extra tube of blood drawn |
66 (14.22) |
Keeping information private and secure |
332 (74.02) |
Interfering with nature by taking part in genetic res. |
49 (11.6) |
6. Would you be willing to provide extra info: about your daily habits |
|
Yes |
586 ( 56.95) |
Most likely |
275 (26.68) |
May be |
122 (11.83) |
No |
47 (4.54) |
6a. about your family’s health |
|
Yes |
682 (66.38) |
Most likely |
211 ( 20.5) |
May be |
89 (8.66) |
No |
46 (4.46) |
Informed consent process |
|
7. Would you be comfortable if an “opt-out” approach was used in the BioGene Bank? |
|
Yes |
461 (44.37) |
Most likely |
197 (18.96) |
Maybe |
166 (15.97) |
No |
215 (20.71) |
8a. Uncomfortable enrolling in a research without having the study explained to# |
|
Yes |
376 (61.94) |
Probably |
122 (20.11) |
May be |
64 (10.52) |
No |
46 (7.43) |
8b. Concerned about being enrolled in a research without my knowledge# |
|
Yes |
459 (74.77) |
Most likely |
83 (13.48) |
May be |
39 (6.44) |
No |
33 (5.33) |
8c. Worried that other kinds of research would be done that I don’t approve of# |
|
Yes |
384 (62.18) |
Probably |
89 (14.42) |
May be |
76 (12.45) |
No | 68 (10.96) |
*this question was formulated slightly differently in the 2011 questionnaire; the statement “in the future” was added to the question.
#excluding those who answered ‘yes’.