Table 1.
Patient and carer demographics
| ID number | Gender | Age | Ethnicity | Severity of CFS/ME (self-defined) | Number of years since diagnosis |
|---|---|---|---|---|---|
|
Patient 1 |
Female |
42 |
White British |
Severe |
9 |
|
Patient 2 |
Male |
50 |
White British |
Moderate/severe (now mild) |
3 |
|
Patient 3 |
Male |
61 |
Indian |
Severe |
22 |
|
Patient 4 |
Female |
28 |
White British |
Mild |
1.5 |
|
Patient 5 |
Female |
39 |
White British |
Mild/moderate |
0.5 |
|
Patient 6 |
Female |
37 |
South Asian |
Moderate/severe |
7 |
|
Patient 7 |
Male |
46 |
White British |
Mild/moderate |
7 |
|
Patient 8 |
Female |
64 |
White British |
Severe |
20 |
|
Patient 9 |
Female |
52 |
South Asian |
Mild/moderate |
Self-diagnosed |
|
Patient 10 |
Female |
32 |
Other white |
Mild/moderate |
2 |
|
Patient 11 |
Male |
35 |
Indian |
Moderate (recently recovered) |
1 |
|
Patient 12 |
Female |
38 |
South Asian |
Mild/moderate |
2.5 |
|
Patient 13 |
Female |
48 |
South Asian |
Moderate |
2 |
|
Patient 14 |
Male |
38 |
South Asian |
Mild |
6 |
|
Patient 15 |
Female |
40 |
Black British |
Moderate |
3 |
|
Patient 16 |
Female |
39 |
Black British |
Mild |
Self-diagnosed |
|
Carer 1 |
Female |
66 |
White British |
Cares for daughter: severe |
16 |
|
Carer 2 |
Female |
53 |
White British |
Cares for son: moderate |
4 |
|
Carer 3 |
Female |
45 |
White British |
Cares for husband: severe |
6 |
|
Carer 4 |
Female |
47 |
White British |
Cares for daughter: mild/moderate |
5 |
|
Carer 5 |
Female |
57 |
Indian |
Cares for husband: severe |
22 |
|
Carer 6 |
Male |
58 |
White British |
Cares for wife: moderate/severe |
10 |
|
Carer 7 |
Male |
70 |
White British |
Cares for wife: moderate/severe |
22 |
|
Carer 8 |
Male |
58 |
White British |
Cares for wife: moderate |
12.5 |
|
Carer 9 |
Male |
46 |
White British |
Cares for wife: moderate |
2 |
| Carer 10 | Male | 71 | South Asian | Cares for his wife: moderate/severe | 8 |