Table 3.
Information Provision, Health Status, Anxiety and Depression, and Illness Perceptions Stratified by Stage of the Disease (mean [SD])
| Patients with metastasis at time of study (n=139) | Patients without metastasis at time of diagnosis study (n=1020) | P value | |
|---|---|---|---|
| Information provisiona | |||
| Information about the disease | 49.7 (21.2) | 48.2 (20.4) | 0.44 |
| Information about medical tests | 64.6 (21.9) | 61.4 (23.3) | 0.14 |
| Information about treatments | 45.2 (19.8) | 36.6 (23.4) | <0.01 |
| Information about other services | 19.9 (21.9) | 19.0 (21.1) | 0.65 |
| Satisfaction with information | 55.2 (26.3) | 53.9 (25.7) | 0.60 |
| Usefulness of information | 62.0 (26.0) | 58.7 (26.1) | 0.18 |
| Want more information, n (%) | 38 (28.6%) | 220 (23.5%) | 0.20 |
| Want less information, n (%) | 2 (1.5%) | 27 (3.0%) | 0.57 |
| Health status (SF-36)b | |||
| General health | 44.4 (24.3) | 63.6 (21.0) | <0.01 |
| Physical functioning | 60.7 (30.8) | 70.1 (27.2) | <0.01 |
| Role limitations physical health | 44.3 (43.9) | 66.4 (41.9) | <0.01 |
| Bodily pain | 70.6 (28.6) | 76.9 (24.2) | <0.01 |
| Vitality | 58.4 (23.1) | 65.9 (20.4) | <0.01 |
| Social functioning | 71.8 (27.4) | 82.2 (21.0) | <0.01 |
| Role limitations emotional problems | 70.9 (41.3) | 81.9 (34.7) | <0.01 |
| Mental health | 75.0 (18.0) | 77.7 (17.3) | 0.09 |
| Anxietyc | 5.5 (4.2) | 4.7 (3.7) | 0.02 |
| Anxiety dichotomizede | 0.09 | ||
| 0–7, n (%) | 95 (72.5%) | 759 (79.3%) | |
| 8–21, n (%) | 36 (27.5%) | 198 (20.7%) | |
| Depressionc | 5.6 (3.5) | 5.2 (3.5) | 0.24 |
| Depression dichotomizede | 0.27 | ||
| 0–7, n (%) | 91 (71.7%) | 722 (76.4%) | |
| 8–21, n (%) | 36 (28.3%) | 223 (23.6%) | |
| Illness perceptionsd | |||
| 1 Consequences | 6.1 (2.8) | 4.0 (2.5) | <0.01 |
| 2 Time line | 7.6 (2.8) | 4.2 (3.3) | <0.01 |
| 3 Personal control | 6.8 (2.9) | 6.0 (3.1) | <0.01 |
| 4 Treatment control | 5.1 (2.8) | 3.5 (2.6) | <0.01 |
| 5 Identity | 5.0 (2.6) | 3.5 (2.6) | <0.01 |
| 6 Concern | 6.5 (2.7) | 4.0 (2.5) | <0.01 |
| 7 Coherence | 3.7 (2.9) | 4.4 (3.0) | 0.01 |
| 8 Emotional representation | 5.0 (2.7) | 3.6 (2.5) | <0.01 |
a
Higher score indicates more perceived receipt of information.
b
Higher score indicates better functioning.
c
Higher score indicates higher levels of anxiety/depression.
d
Higher score indicates worse illness perceptions. eBased on their sum score, participants can be divided into two categories (<8 no anxiety/depression;≥8 anxiety/depression).28,29
SD, standard deviation.