Table 3.
Prevalence of burden within religious & spiritual, independence, family and social and treatment sub-scales by GSF or non-GSF criteria
| |
GSF group |
Non-GSF group |
|
||||||
|---|---|---|---|---|---|---|---|---|---|
|
Subscale and item |
Very much |
Quite a bit |
A little bit |
Not at all |
Very much |
Quite a bit |
A little bit |
Not at all |
Missing |
| n(%) | n(%) | n(%) | n(%) | n(%) | n(%) | n(%) | n(%) | n(%) | |
|
Religious & Spiritual | |||||||||
| Thoughts about death or dying. |
9 (5.1) |
11 (6.2) |
32 (18.1) |
125(70.6) |
15 (4.8) |
17 (5.4) |
42 (13.5) |
238 (76.3) |
25 (4.9) |
| Religious or spiritual needs not being met. |
4 (2.2) |
5 (2.8) |
13 (7.3) |
157 (87.7) |
4 (1.3) |
4 (1.3) |
13 (4.2) |
287 (93.2) |
27 (5.3) |
|
Independence | |||||||||
| Losing your independence. |
36(20.1) |
39(21.8) |
38 (21.2) |
66 (36.9) |
49 (15.4) |
29 (9.1) |
69 (21.6) |
172 (53.9) |
16 (3.1) |
| Changes in your ability to carry out usual activities. |
32(17.6) |
42 (23.1) |
42(23.1) |
66 (36.3) |
40 (12.7) |
49 (15.6) |
62 (19.7) |
163 (51.9) |
18 (3.5) |
| Changes in your ability to carry out usual household tasks. |
36 (20.1) |
37 (20.7) |
34 (19) |
72 (40.2) |
38 (12.1) |
50 (16) |
58 (18.5) |
167 (53.4) |
22 (4.3) |
|
Family & Social | |||||||||
| Feeling that people do not understand what you want. |
7 (3.8) |
33 (18.1) |
38 (20.9) |
104 (57.1) |
20 (6.3) |
24 (7.6) |
47 (14.9) |
225 (71.2) |
16 (3.1) |
| The effect that your illness is having on your family and other people. |
34 (18.7) |
55 (30.2) |
42 (23.1) |
51 (28) |
49 (15.3) |
63 (19.6) |
98 (30.5) |
111 (34.6) |
11 (2.1) |
| Lack of support from your family and other people. |
6(3.3) |
7 (3.9) |
18 (9.9) |
150 (82.9) |
9 (2.8) |
7 (2.2) |
15 (4.7) |
286 (90.2) |
16 (3.1) |
| Needing more help than your family can give. |
11 (6.3) |
17 (9.7) |
25 (14.3) |
122 (69.7) |
14 (4.5) |
27 (8.6) |
39 (12.4) |
234 (74.5) |
25 (4.9) |
|
Treatment | |||||||||
| Side effects from your treatments. |
11 (6.2) |
22 (12.4) |
38 (21.5) |
106 (59.9) |
17 (5.4) |
31 (9.9) |
54 (17.3) |
211 (67.4) |
24 (4.7) |
| The long term effects of your treatment. | 22 (12.4) | 22 (12.4) | 37 (20.8) | 97 (54.5) | 34 (10.8) | 26 (8.2) | 72 (22.8) | 184 (58.2) | 20 (3.9) |