Table 1.
The Amagugu intervention detailing the six steps, purpose of the steps, materials and activities and session goals
Session/Visit | Description | Purpose | Materials and activities | Session goals |
---|---|---|---|---|
1: Positive parenting |
One-on-one counselling session between mother and lay counsellor which takes place by arrangement at the home |
Assess mothers' readiness to disclose, offer psycho-education on disclosure steps, communicate pros and cons of disclosure, encourage an informed decision to participate and proceed with disclosure |
My intervention steps poster |
Increase mothers’ knowledge about age-appropriate disclosure |
A3 illustrated colour poster | ||||
My intervention calendar |
Increase mothers' understanding of risks and benefits of disclosure |
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A5 illustrated colour card | ||||
2: Positive families |
Family visit co-facilitated by the counsellor and mother - family invited by the mother (either biological or socially-defined members); not an HIV specific activity as children are present |
Engage family members in a fun family process, create a sense of belonging and pride, use a strengths-based model, communicate respect for culture and values, introduce concept of play-for-communication and materials |
My family tree |
Increase family awareness of parenting aims of the intervention |
A2 family tree poster with 14 illustrated sticker characters |
Encourage a sense of belonging among all family members |
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3: Positive life stories |
One-on-one counselling session between mother and counsellor using artwork and narrative therapy activities |
Improve emotional well-being of the mother in preparation for disclosure; use ‘head, hands and heart’ model to maintain empathy and introduce concepts of emotional work; use artwork to facilitate positive experiences of love, relationships and to unpack the story of becoming HIV infected and living with HIV; dispel myths and misperceptions about HIV and offer HIV information |
My life story |
Mother feels supported, respected and understood by the counsellor |
A4 paper, artwork materials |
Mother constructs a family/parenting narrative |
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My HIV story |
Mother more emotionally contained and able to focus on the child |
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A4 illustrated HIV story telling exercise |
Mother has confidence in her HIV specific knowledge |
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4: Positive practices |
One-on-one training session to personalise 5-step disclosure intervention and practise using role-play |
Offer specific guidance on planning and preparing the disclosure event (time, place and people) |
Talk and play reminder |
Mother increases her understanding of what is age-appropriate and is confident to talk about HIV in a child-friendly way |
A5 illustrated colour card | ||||
Teach the 5- step process and what each step offers the child |
Family life line |
Mother develops and practises her own talking points, has a language to use in approaching disclosure |
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A4 card artwork and stickers | ||||
Demonstrate the 5-step disclosure intervention and teach age-appropriate activities and games |
HIV body map |
Reduce mothers' anxiety about ‘dreaded questions’ by developing child friendly and age-appropriate answers |
||
A4 HIV body map game with stickers | ||||
Through practice ensure that mother is skilled, confident, and feels enabled to undertake disclosure using the intervention tools and materials. |
Playing cards |
Mother understands child’s needs for information, activity, reassurance and comfort |
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A7 10 matching pairs playing card set | ||||
Help mother develop her own child and family personalised materials |
Safety hand |
Mother is confident to proceed with disclosure |
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A4 card and pens for artwork | ||||
Allow for role playing, practice and development of personal talking points |
Family treasures story book |
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A5 illustrated 14 page English-Zulu story book | ||||
5: Positive planning |
One-on-one training session to train mother on health promotion activities and to prepare for a joint parent-child clinic visit |
Encourage mothers to move beyond disclosure and increase health promotion and the child’s access to a health support network and improve custody planning. Demonstrate clinic visit games and activities and encourage mother to take the child on a clinic visit, empower mother to advocate for her own and her child’s health care needs, counsel around fears and stigma |
Clinic visit reminder |
Mothers move beyond disclosure to health promotion and planning |
A5 illustrated colour card | ||||
Name tag |
Mother is able to advocate for her and her children’s health rights |
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A8 name tag with beaded strap | ||||
Clinic check list |
Mother ensures that HIV treatment is demystified and personalised for the child |
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A4 “I-spy” game | ||||
My care circle (health) |
Health care environment becomes familiar |
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A4 illustrated card with health care contact information |
Increase child’s participation |
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Child has increased understanding of healthy sexuality | ||||
6: Positive futures | Family session facilitated by mother and attended by counsellor, provides mother and children opportunities to share intervention learning and achievements | Reinforce play-for-communication, teach mothers basic skills for developmental play, provide positive reinforcement for emotional sharing, allows the child to participate, develop self efficacy and pride around intervention achievements |
Uthando doll |
Mothers have increased understanding about how children use play to communicate |
Handmade ethnically appropriate doll | ||||
My care circle (custody) |
Children feel valued and rewarded for participation | |||
A4 illustrated card with emergency care contact information |