1: Positive parenting
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One-on-one counselling session between mother and lay counsellor which takes place by arrangement at the home
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Assess mothers' readiness to disclose, offer psycho-education on disclosure steps, communicate pros and cons of disclosure, encourage an informed decision to participate and proceed with disclosure
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My intervention steps poster
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Increase mothers’ knowledge about age-appropriate disclosure
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A3 illustrated colour poster
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My intervention calendar
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Increase mothers' understanding of risks and benefits of disclosure
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A5 illustrated colour card
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2: Positive families
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Family visit co-facilitated by the counsellor and mother - family invited by the mother (either biological or socially-defined members); not an HIV specific activity as children are present
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Engage family members in a fun family process, create a sense of belonging and pride, use a strengths-based model, communicate respect for culture and values, introduce concept of play-for-communication and materials
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My family tree
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Increase family awareness of parenting aims of the intervention
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A2 family tree poster with 14 illustrated sticker characters
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Encourage a sense of belonging among all family members
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3: Positive life stories
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One-on-one counselling session between mother and counsellor using artwork and narrative therapy activities
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Improve emotional well-being of the mother in preparation for disclosure; use ‘head, hands and heart’ model to maintain empathy and introduce concepts of emotional work; use artwork to facilitate positive experiences of love, relationships and to unpack the story of becoming HIV infected and living with HIV; dispel myths and misperceptions about HIV and offer HIV information
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My life story
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Mother feels supported, respected and understood by the counsellor
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A4 paper, artwork materials
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Mother constructs a family/parenting narrative
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My HIV story
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Mother more emotionally contained and able to focus on the child
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A4 illustrated HIV story telling exercise
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Mother has confidence in her HIV specific knowledge
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4: Positive practices
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One-on-one training session to personalise 5-step disclosure intervention and practise using role-play
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Offer specific guidance on planning and preparing the disclosure event (time, place and people)
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Talk and play reminder
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Mother increases her understanding of what is age-appropriate and is confident to talk about HIV in a child-friendly way
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A5 illustrated colour card
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Teach the 5- step process and what each step offers the child
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Family life line
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Mother develops and practises her own talking points, has a language to use in approaching disclosure
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A4 card artwork and stickers
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Demonstrate the 5-step disclosure intervention and teach age-appropriate activities and games
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HIV body map
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Reduce mothers' anxiety about ‘dreaded questions’ by developing child friendly and age-appropriate answers
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A4 HIV body map game with stickers
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Through practice ensure that mother is skilled, confident, and feels enabled to undertake disclosure using the intervention tools and materials.
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Playing cards
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Mother understands child’s needs for information, activity, reassurance and comfort
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A7 10 matching pairs playing card set
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Help mother develop her own child and family personalised materials
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Safety hand
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Mother is confident to proceed with disclosure
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A4 card and pens for artwork
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Allow for role playing, practice and development of personal talking points
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Family treasures story book
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A5 illustrated 14 page English-Zulu story book
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5: Positive planning
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One-on-one training session to train mother on health promotion activities and to prepare for a joint parent-child clinic visit
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Encourage mothers to move beyond disclosure and increase health promotion and the child’s access to a health support network and improve custody planning. Demonstrate clinic visit games and activities and encourage mother to take the child on a clinic visit, empower mother to advocate for her own and her child’s health care needs, counsel around fears and stigma
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Clinic visit reminder
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Mothers move beyond disclosure to health promotion and planning
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A5 illustrated colour card
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Name tag
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Mother is able to advocate for her and her children’s health rights
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A8 name tag with beaded strap
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Clinic check list
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Mother ensures that HIV treatment is demystified and personalised for the child
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A4 “I-spy” game
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My care circle (health)
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Health care environment becomes familiar
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A4 illustrated card with health care contact information
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Increase child’s participation
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Child has increased understanding of healthy sexuality
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6: Positive futures |
Family session facilitated by mother and attended by counsellor, provides mother and children opportunities to share intervention learning and achievements |
Reinforce play-for-communication, teach mothers basic skills for developmental play, provide positive reinforcement for emotional sharing, allows the child to participate, develop self efficacy and pride around intervention achievements |
Uthando doll
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Mothers have increased understanding about how children use play to communicate
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Handmade ethnically appropriate doll
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My care circle (custody)
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Children feel valued and rewarded for participation |
A4 illustrated card with emergency care contact information |