Table 1.

Demographics and socioeconomic characteristics of participants with FRDA in the UK and Germany

	United Kingdom1	Germany2
Mean Age (years) ± SD	32 ± 18	28 ± 14
	(Range 8-71)	(Range 8-56)
	n=74	n=28
Gender	36 (48%) Male	10 (36%) Male
	39 (52%) Female	18 (64%) Female
	n=75	n=28
Adults (aged >18 years)	50 (67%)	20 (71%)
Children (aged <18 years)	25 (33%)	8 (29%)
	n=75	n=28
Mean age of symptom onset	14.1 years (±11.3 years)	11.3 years (± 6.1)
	Range 2-63 years	Range 4-28 years
	n=72	n=26
Time from symptoms to first doctor visit	1.6 years (± 3.1 years)	2.0 years (± 3.1)
	Range 0-19 years	Range 0-10 years
	n=63	n=27
Time from first doctor visit for symptoms to diagnosis	2.7 years (± 3.7 years)	1.9 years (± 2.3)
	Range 0-20 years	Range 0-8 years
	n=66	n=28
Living with their parents	40 (53%)	17 (61%)
	n=75	n=28
In primary/secondary/higher education	26 (35%)	11(34%)
	n=74	n=32*
Employment status (% employed full time)	5 (7%)	4 (13%)
	n=74	n=32*
Unemployed due to FRDA	22 (30%)	8 (25%)
	n=74	n=32*

¹Source UK – PCIF.

²Source Germany – PCIF.

*Multiple responses.