Table 2.
Participant reported symptoms experienced in the previous 12 months
| Symptoms | United Kingdom n(%)1 | Germany n (%)2 |
|---|---|---|
|
Gait/Posture symptoms | ||
| Problems with lower limb coordination |
73 (97%) |
23 (82%) |
| Muscle weakness (upper or lower limbs) |
68 (91%) |
17 (61%) |
| Problems with upper limb coordination |
70 (93%) |
18 (64%) |
| Gait Ataxia (off balance when walking) |
60 (80%) |
18 (64%) |
| Body sway when standing |
63 (84%) |
13 (46%) |
| Problems with standing upright |
60 (80%) |
- |
| Muscle wasting (upper or lower limbs) |
56 (75%) |
17 (61%) |
| Problems with sitting upright |
55 (73%) |
- |
| Foot problems/deformities |
50 (67%) |
15 (54%) |
| Scoliosis (curved spine) |
46 (46%) |
20 (71%) |
| Problems with sitting or standing upright |
- |
23 (82%) |
|
Other Symptoms |
|
|
| Fatigue |
65 (87%) |
21 (75%) |
| Slowness and slurring of speech |
62 (83%) |
19 (67%) |
| Problems with swallowing |
51 (68%) |
0 |
| Anxiety |
39 (52%) |
10 (35%) |
| Depression |
37 (49%) |
7 (25%) |
| Problems with eye movements |
43 (57%) |
8 (28%) |
| Palpitations |
31 (41%) |
6 (21%) |
| Heart enlargement |
24 (32%) |
9 (32%) |
| Other heart problems |
15 (20%) |
5 (17%) |
| Difficulty breathing |
26 (35%) |
6 (21%) |
| Loss of hearing |
25 (33%) |
6 (21%) |
| Loss of sight |
22 (29%) |
7 (25%) |
| Diabetes |
9 (12%) |
4 (14%) |
| Heart failure | 5 (7%) | 2 (7%) |
1Source UK – PCIF.
2Source Germany - PCIF.