TABLE 1.

Description of family caregivers

Primary caregiver (PC)	Age, years	Sex	Relationship to patient	CBI total score	Secondary caregiver (SC)	Age, years	Sex	Relationship to patient	CBI total score	Weekly paid care, h
PC1	64	Female	Mother	48	SC1	66	Male	Father	53	10
PC2	30	Male	Son	60	SC2	31	Female	Daughter	55	44
PC3	63	Male	Husband	53	SC3	76	Male	Father	36	42
PC4	58	Female	Mother	54	SC4	N/A	N/A	N/A	N/A	10
PC5*	49	Female	Wife	53	SC5	26	Male	Son	16	98
PC6	44	Female	Wife	35	SC6	66	Male	Father	15	52.5
PC7*	65	Male	Father	34	SC7	62	Female	Mother	53	140
PC8	47	Female	Wife	49	SC8	46	Female	Sister	48	59
PC9	64	Female	Mother	50	SC9	66	Male	Father	43	38
PC10	65	Female	Mother	44	SC10	N/A	N/A	N/A	N/A	14
PC11*	51	Female	Wife	42	SC11	N/A	N/A	N/A	N/A	148
PC12*	62	Female	Wife	23	SC12	30	Female	Daughter	11	140

^*Patient received direct funding. CBI Caregiver Burden Inventory; N/A Not available