TABLE 2.

Results of the Caregiver Burden Inventory

Caregiver Burden Inventory domain scores	Caregiver
	Primary (n=12)	Secondary (n=9)
Total score (maximum = 96)	49.0 (39.5–53.0)	42.5 (21.0–51.7)
Time-dependent burden (maximum = 20)	18.0 (16.5–19.5)	17.0 (13.8–18.5)
Developmental burden (maximum = 20)	13.0 (10.0–13.5)	9.5 (2.5–14.8)
Physical burden (maximum = 20)	10.0 (7.5–12.0)	5.0 (1.0–7.8)
Social burden (maximum = 16)	6.0 (4.0–7.5)	4.5 (1.5–6.8)
Emotional burden (maximum = 20)	1.0 (0.0–2.0)	0.5 (0.0–2.0)

Data presented as median (interquartile range)