Table 2.
Cohort study data collection instruments and timeline
| Nov 2011 | Dec 2011 | Jan 2012 | Feb 2012 | Mar 2012 | Apr 2012 | May 2012 | June 2012 | July 2012 | Aug 2012 | Sept 2012 | Oct 2012 | Nov 2012 | Dec 2012 | |
|---|---|---|---|---|---|---|---|---|---|---|---|---|---|---|
|
Recruitment |
✓ |
✓ |
✓ |
✓ |
✓ |
|
|
|
|
|
|
|
|
|
|
Adult-NC Participants (Including Young Adult NC Participants) | ||||||||||||||
| Monthly interviews |
|
|
|
1 |
2 |
3 |
4 |
5 |
6 |
7 |
8 |
9 |
10 |
11 |
| The LINC Study Population Survey |
|
|
|
|
|
|
|
|
|
|
1 |
|
|
|
| PACIC |
|
|
|
|
|
1 |
|
|
|
|
|
2 |
|
|
| MSPSS |
|
|
|
|
1 |
|
|
|
2 |
|
|
|
3 |
|
| Life-H |
|
|
|
|
1 |
|
|
|
2 |
|
|
|
3 |
|
| GYV (Young Adults with NC Only) |
|
|
|
|
1 |
|
|
|
2 |
|
|
|
|
3 |
|
Parent Participants | ||||||||||||||
| Monthly Interviews |
|
|
|
1 |
2 |
3 |
4 |
5 |
6 |
7 |
8 |
9 |
10 |
11 |
| The LINC Study Population Survey |
|
|
|
|
|
|
|
|
|
|
1 |
|
|
|
| PACIC |
|
|
|
|
|
1 |
|
|
|
|
|
2 |
|
|
| MSPSS |
|
|
|
|
1 |
|
|
|
2 |
|
|
|
3 |
|
| Life-H |
|
|
|
|
1 |
|
|
|
2 |
|
|
|
3 |
|
|
Mature Minor Participants | ||||||||||||||
| Health Status |
|
|
|
|
1 |
|
|
|
2 |
|
|
|
|
3 |
| TRAQ |
|
|
|
|
1 |
|
|
|
2 |
|
|
|
|
3 |
| GYV |
|
|
|
|
1 |
|
|
|
2 |
|
|
|
|
3 |
| PAM |
|
|
|
|
1 |
|
|
|
2 |
|
|
|
|
3 |
| PACIC | 1 | 2 | 3 | |||||||||||