TABLE 2.

Key research questions for communication of aggregate results

HOW: Effectiveness, feasibility, financial costs, and participant satisfaction associated with various communication methods (e.g., newsletters, web sites, community presentations, media coverage, social networking tools) for different study populations and study designs WHAT: Which aspects of aggregate results to focus on (e.g., in the context of biobanks, should communication include general descriptions of how stored materials were used, by whom, and for what kinds of studies; communication of results from individual studies; or both? Should participants be able to access information about the specific studies in which their samples and data were actually used? What additional information would participants or the general public like to have?) WHEN: When to report findings relative to scientific publication/dissemination; need for updates as more knowledge accumulates WHO: Responsibilities for preparing and communicating aggregate result summaries when researcher has no direct relationship with participants