Table 5.
Who studied: what studied - where Patient: Patient held maternal and/or child records - developed countries
| Type of study | Research question* | Results (positive outcome of having record) | Results (neutral) | Results (negative outcome of having record) | |
|---|---|---|---|---|---|
| [64] Draper J, et al. 1986. | Case controlled survey (#171) | What are Cambridge (UK) women’s views on carrying MHR? | Generally positive view (71/88 liked carrying record; 83/88 thought there were advantages), women appreciate access to information. | ||
| [65] Elbourne D, et al. 1987. | Randomized controlled trial (#290) | What are women’s preferences for carrying own MHR (Oxford)? | Positive effects of carrying more complete record as opposed to notes are: possibly decreased clerical time, a greater sense of feeling of control, confidence talking with medical personnel. No increase in lost notes over system. | ||
| [66] Lovell A, et al. 1987. | Randomized controlled trial (#246) | What are women’s preferences for carrying own MHR (London, UK), and does carrying own increase satisfaction with care? | Positive effects of carrying more complete record as opposed to notes are: possibly decreased clerical time, increased feeling of control. Decrease in lost/mislaid notes (0 for PHMR) over system (25%). | ||
| [67] Saffin K, et al. 1991. | Case controlled survey (#452) | How well are children’s records kept by parents, and do parents who have PHR (#284) and those who don’t (#168) prefer to keep their children’s records (Oxfordshire)? | Parents who kept their children’s records had more positive view of practice (75% PHR vs. 26% non-PHR. Appreciated access, 90% PHCR available for audit. | ||
| [68] Charles R. 1994. | Survey and case control comparison of physical records (#155) | Is the parent held record an effective means of communication, does it derive any benefit if yes, and is the North Staffordshire PHR a good quality source of patient information for parents (#100) and professionals (#55)? | The vast majority of parents (87–99%), nurses (67–100%) and health visitors (70–100%) agreed with a smaller majority of doctors (53–78%) that the child’s individual record plus the information on child healthcare helped improve communication and care in at least 3 areas. Audits compared to clinic held records revealed significantly more information recorded on the parent held record. | ||
| [69] Jeffs D, et al. 1994. | Random sample interview (#622) | Are PHR retained and used to appropriately to record immunizations, and are parents and providers satisfied with their use (New South Wales)? | The majority (93%) of parents retained their records, with the majority having at least one (91%), and a smaller majority (68%) having all immunizations recorded in the record by. The majority of providers are (80–90%) satisfied with the use of the record. | ||
| [70] Webster J, et al. 1996. | Descriptive /survey (#200) | What are women’s preferences for carrying own MHR in Brisbane, Australia, and does carrying own increase satisfaction with care? | Greater satisfaction with care in PHR group, though 36% forgot record at least once in at least 5 visits. Women felt increased control with PHR. | ||
| [71] Homer CS, et al. 1999. | Randomized controlled trial (#150) | What are women’s preferences for carrying own MHR (as opposed to a care card,) and does carrying full record increase satisfaction with care (New South Wales)? | Women tended to feel more confident carrying full record, and reported a significantly greater feeling of control and access to information about their pregnancy; 89% would choose to do so again. | ||
| [72] Phipps H. 2001. | Qualitative - interview (#21) | What is impact of carrying own record during pregnancy (Sydney, Australia)? | Great majority of women favored carrying their own record in this and subsequent pregnancy, felt themselves and family to be better-informed, minimal worry about losing record. | ||
| [73] Usha Kiran TS, et al. 2002. | Prospective survey (#72) | What are women’s preferences for carrying own MHR and is it an increased burden (South Wales, UK)? | The majority (90.2%) of mothers preferred to carry own notes; feeling it improves access to their case notes. | ||
| [74] Shaw E, et al. 2008. | Randomized controlled trial (#193) | Does secure access to pre-natal records lead to higher access to online information and greater satisfaction with care (Hamilton, Ontario)? | Study group accessed pre-natal information much more frequently, and average of 8.6 more log-ins (including own record: 84.2% of time) both groups satisfied with information provided. | ||
| [75] Clendon J, et al. 2010. | Qualitative – interview (#35) | What is the impact of the PHCR in New Zealand | This is a good tool for improving interaction between mother and nurse. Mothers keep the record for years; sometimes pass them on to child when grown. | ||
| [76] Brown HC, et al. 2004. | Systematic review (3 trials) | What are the effects of having women carry their own case notes during pregnancy? | Positive patient view of more control of care, and an increased sense of satisfaction. | Inconclusive health outcomes | |
| [77] Bjerkeli Grøvdal L, et al. 2006. | Randomized controlled trial (#309) | Do PHR have positive effect on parents’ knowledge, collaboration with or utilization of healthcare in Norway? | No health effect or improvement in other measures noted by parents. Majority of parents carried record. |
*
See notes regarding research question(s) and results