Table 3.

Endpoints

Quality of life during the last 3 days of life and Quality of dying	Process of care	Satisfaction with health care in the last 3 days of life
Quality of life: Perceptions by relatives and health care providers of quality of life during last 3 days of life: Global rate (0–10)	Technical process Appropriate use of nursing interventions Changes in treatment policy/NTBR	Patient satisfaction with care: Perceptions by relatives: Preferences honoured regarding way of dying Satisfaction with:
Physical comfort Psychological well-being Social functioning and well-being Spiritual well-being, being in peace	Symptom management Recognition of imminent death Referrals to multidisciplinary consultation team	- technical process
		- decision making process
		- interpersonal and communication style
Quality of dying of patient Perceptions by family and health are providers of quality of dying of patient: Global rate (0–10)		Relatives’ satisfaction with care Satisfaction with:
		- technical process
Life closure and death preparation Circumstances of death		- decision making process
		- timeliness and usefulness of information and counselling
		- interpersonal and communication style
Quality of life of family Health status Grief resolution		- extent to which patient/family preferences honoured
		- extent to which opportunities provided to patient to complete life meaningfully
		- present at patients’ death

Derived and adapted from Stewart et al. (1999) Conceptual model of factors affecting quality and length of life of dying patients and their families.