Table 4.

Key Theme: Community Consultation And Public Disclosure

	Quote	Participant
Standard CC/PD Strategies
	…if we had had some forewarning on the ambulances so that when we were on a [condition being studied] patient, we could give them a pamphlet. “Hey, just so you know, this is coming up. We know you have [condition being studied], we know we come get you a lot. Just in case you don’t read the paper or anything like that, here’s a pamphlet on it and who to call if you have questions or anything like that.”	Paramedic, RAA employee 6 years or more
	I would involve the media and I think if you involve the media properly, you can a lot of times get free interest in this [the EFIC study].	Paramedic, RAA employee 6 or more years
	…Buses are a very good way to get information out because buses go just about everywhere and the people that don’t have cars are on the buses.	Paramedic, RAA employee 2–3 years
	In this era, we have access to the internet…so the easiest way to me, and a cost effective way, is to set up a website…and you include that web address on everything you do…and put some kind of comment section in there [the website] and allow people to put their information in there and of course allow them to do it anonymously…people can go to the public library and get on their computer, they can get on their phone, there’s very few people who do not have access to a computer anymore	Paramedic, RAA employee 2–3 years
Concerns and Challenges of Standard Strategies
	You have meetings, you have placards or fliers out there and I mean, do people even look at the placards when they get on the bus? If they do look at it and say, “[name of study]. What is that?” And then look at something else.	Paramedic, RAA employee 2–3 years
	The meetings are great because I’m all in favor of being able to talk and ask questions, but then it’s a question of whether or not people can get to the meetings.	Paramedic, RAA employee 4–5 years
	The problem with that question [media blitz] is that it always boils down to money. And how could we do this? How could we afford to pay for it? Who’s going to pay for it? What’s the cost-benefit? Communication with people is expensive.	Paramedic, RAA employee 6 or more years
	Even if a patient does see something on the bus and see something in the newspaper and see something on the news and sees a flier, it doesn’t mean they are actively going to investigate what’s going on. But if we happen to catch them one-on-one in the back of the ambulance, there’s really no way they can ignore [us]…	Paramedic, RAA employee 6 or more years
Innovative Strategies
	In a perfect world it would start with the family doctor.	Paramedic, RAA employee 4–5 years
	Maybe a pamphlet insert for any [condition being studied] medication that’s issued by a pharmacy.	Paramedic, RAA employee 4–5 years
	.…get the locations of each of our [condition being studied] calls for the last 24 months and do a mailer for those people.	Paramedic, RAA employee 4–5 years
	Some of the housing authority people…could just put a note on the door [of the residents]	EMT, RAA employee 6 or more years
EMS Involvement
	[at a town hall style meeting]…they [EMS providers] will present not only the material you tell them to present, that must be presented per the IRB standards, but also can present to them [members of the community] what the general public will expect to see EMT doing in relation to this study. We can show them a sample call. That way people are not terrified when they see us.	Paramedic, RAA employee 4–5 years