Table 1.
Participant characteristics
| n | (%) * | |
|---|---|---|
| Years as IRB chair: Mean = 6.7; range = 1–40 | ||
| Age | ||
| <50 years | 37 | (18) |
| ≥50 years | 149 | (74) |
| Sex | ||
| Male | 129 | (64) |
| Female | 58 | (29) |
| Race | ||
| White | 173 | (86) |
| Asian | 4 | (2) |
| Black | 3 | (2) |
| American Indian/Alaska Native | 1 | (1) |
| Other | 2 | (1) |
| Hispanic | ||
| No | 180 | (90) |
| Yes | 7 | (4) |
| Professional background § | ||
| Medicine | 82 | (41) |
| Social sciences | 51 | (25) |
| Biological sciences | 26 | (13) |
| Epidemiology/public health | 18 | (9) |
| Bioethics | 13 | (7) |
| Humanities | 7 | (4) |
| Law | 3 | (2) |
| Other | 16 | (8) |
| Current institution | ||
| Academic institution | 164 | (82) |
| Independent IRB | 14 | (7) |
| Non-academic hospital/healthcare setting | 11 | (6) |
| Non-academic research institute | 10 | (5) |
| Other | 2 | (1) |
| Familiarity with review of human genetic research | ||
| More familiar † | 156 | (78) |
| Less familiar ‡ | 45 | (22) |
| Ever reviewed protocol involving genotype-driven recruitment | ||
| No | 145 | (72) |
| Yes | 34 | (17) |
| Unsure | 12 | (6) |
*
May not sum to 100% due to missing data
§
Respondents were allowed to choose more than one
†
Includes responses ‘somewhat familiar’, ‘familiar’ and ‘very familiar’
‡
Includes responses ‘not at all familiar’ and ‘not too familiar’