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. Author manuscript; available in PMC: 2013 Apr 22.
Published in final edited form as: IRB. 2012 May-Jun;34(3):1–10.

Table 2.

Weighing ethical dilemmas

n (%) *
When thinking about whether researchers should be allowed to contact eligible participants in the first study about taking part in the second study, which of the following considerations should be given more weight (recognizing that both may be important)?
 Protecting participants from unwelcome contact from researchers 103 (51)
 Providing participants the opportunity to hear about research they might like to participate in 60 (30)
 Unsure/Don’t know 23 (11)
When thinking about whether participants should be offered their individual genetic results from the first study when contacted about taking part in the second study, which of the following considerations should be given more weight (recognizing that both may be important)?
 Avoiding the disclosure of unwanted genetic information 98 (49)
 Avoiding leaving participants uninformed about why they are eligible for the second study 72 (36)
 Unsure/Don’t know 16 (8)
Again when thinking about whether participants should be offered their individual genetic results from the first study when contacted about taking part in the second study, which of the following considerations should be given more weight (recognizing that both may be important)?
 Avoiding the disclosure of genetic information that has uncertain clinical utility 93 (46)
 Promoting participant autonomy to decide for themselves what kind of information they find useful 79 (39)
 Unsure/Don’t know 12 (6)
*

May not sum to 100% due to missing data