Table 2.
n | (%) * | |
---|---|---|
When thinking about whether researchers should be allowed to contact eligible participants in the first study about taking part in the second study, which of the following considerations should be given more weight (recognizing that both may be important)? | ||
Protecting participants from unwelcome contact from researchers | 103 | (51) |
Providing participants the opportunity to hear about research they might like to participate in | 60 | (30) |
Unsure/Don’t know | 23 | (11) |
When thinking about whether participants should be offered their individual genetic results from the first study when contacted about taking part in the second study, which of the following considerations should be given more weight (recognizing that both may be important)? | ||
Avoiding the disclosure of unwanted genetic information | 98 | (49) |
Avoiding leaving participants uninformed about why they are eligible for the second study | 72 | (36) |
Unsure/Don’t know | 16 | (8) |
Again when thinking about whether participants should be offered their individual genetic results from the first study when contacted about taking part in the second study, which of the following considerations should be given more weight (recognizing that both may be important)? | ||
Avoiding the disclosure of genetic information that has uncertain clinical utility | 93 | (46) |
Promoting participant autonomy to decide for themselves what kind of information they find useful | 79 | (39) |
Unsure/Don’t know | 12 | (6) |
May not sum to 100% due to missing data