Table 3.
Transparent Expert Consultation (TEC) considerations and participants
| TEC summit topic | Areas considered in TEC workshops | Number of attendees | Number of online responders | Backgrounds of individuals attending and responding |
|---|---|---|---|---|
| Ethics[20] |
(1) Participation in research; (2) Research ethics committee approval; (3) Informed consent |
28 |
26 |
ethicists, academics, researchers, members of research ethics committees, clinicians, service providers, commissioners, patients/carers |
| Outcomes[22] |
(1) Outcome measure properties; (2) Optimal time points; (3) Validity of proxy data |
31 |
28 |
academics, researchers, clinicians, commissioners, experts in outcome measurement |
| Mixed methods[23] |
(1) Phase I and pre-clinical studies; (2) Phase II and III studies and trials; (3) Implementation studies |
33 |
26 |
journal editors, academics, researchers, clinicians, experts in health services research/mixed methodology, patients/carers |
| Statistics[21] |
(1) Missing data; (2) Attrition; (3) Response shift |
20 |
19 |
statisticians, researchers, academics, clinicians, patients/carers |
| Health economics[24] |
(1) Cost methods and relevance to EoLC; (2) Outcome assessment; (3) Equity issues. |
28 |
34 |
health economists, service commissioners, researchers, academics, clinicians, patients/carers |
| TOTAL | 140 | 133 |
EoLC, end of life care.