Table 5.
Expected impact of availability of QoL data
| n (%)* |
Obstetricians |
Neonatologists |
Paediatric neurologists |
p | |
|---|---|---|---|---|---|
| n 1(%)* | n 2(%)* | ||||
| n 3(%)* | |||||
|
Impact on society |
|
|
|
|
|
| • Provide information on the children’s outcome |
72 (93.5) |
19 (100) |
43 (97.7) |
10 (71.4) |
0.004 |
| • Make EP Children concern of society |
64 (83.1) |
16 (84.2) |
36 (81.8) |
12 (85.7) |
NS |
|
Impact on the family |
|
|
|
|
|
| • Change the way parents see their child’s outcome |
59 (76.7) |
14 (73.7) |
34 (77.3) |
11 (78.6) |
NS |
| • Improve support and help to the family |
71 (92.2) |
18 (94.7) |
39 (88.6) |
14 (100) |
NS |
|
Medical impact |
|
|
|
|
|
| • Provide overall knowledge of the outcome of EP Children |
77 (100) |
19 (100) |
44 (100) |
14 (100) |
NS |
| • Enhance the professional’s intuitive assessment |
54 (75.0) |
9 (56.3) |
34 (81.0) |
11 (78.6) |
NS |
| • Integrate the concept of QoL in care practices |
66 (86.9) |
16 (88.9) |
36 (81.8) |
14 (100) |
NS |
| • Give back the patient the feeling that he/she is central to the physician’s preoccupations |
48 (65.7) |
8 (50.0) |
31 (72,1) |
9 (64.3) |
NS |
| • Improve communication between the care team, the child and the family |
66 (85.8) |
18 (94.7) |
34 (77.3) |
14 (100) |
NS |
| • Give parents more precise information on the outcome of their child |
64 (83.2) |
19 (100) |
34 (77.3) |
11 (78.6) |
0.046 |
| • Rekindle ethical debate on neonatal resuscitation practices |
68 (88.3) |
17 (89.5) |
39 (88.6) |
12 (85.8) |
NS |
| • Makes no contribution to my practice | 5 (6.6) | 0 (0.0) | 5 (11.4) | 0 (0.0) | NS |
*% of responders to the question.
QoL, quality of life.
EP Children, extremely preterm children.