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. Author manuscript; available in PMC: 2013 Dec 7.

Published in final edited form as: J Proteome Res. 2012 Oct 30;11(12):5592–5601. doi: 10.1021/pr300796m

Top panel. This researcher driven paradigm is predominant today. The researcher plays the central role by walking the process through various steps including obtaining funding, getting IRB approval and arranging to collect the specimens. The roles of the public here are often limited to providing input through lay membership on the IRB and providing specimens. The biobank is then governed by the researcher who drove the process. Bottom panel. A new paradigm for biobanking governance begins with a partnership between the researcher and the public, often the patient advocate community. They seek funding and IRB approval together, with both advocating on behalf of the research. The public arm of the partnership is well suited to help recruit participation. The biobank is then governed by the partnership. In this paradigm the public participates in all aspects of the process.

Top panel. This researcher driven paradigm is predominant today. The researcher plays the central role by walking the process through various steps including obtaining funding, getting IRB approval and arranging to collect the specimens. The roles of the public here are often limited to providing input through lay membership on the IRB and providing specimens. The biobank is then governed by the researcher who drove the process. Bottom panel. A new paradigm for biobanking governance begins with a partnership between the researcher and the public, often the patient advocate community. They seek funding and IRB approval together, with both advocating on behalf of the research. The public arm of the partnership is well suited to help recruit participation. The biobank is then governed by the partnership. In this paradigm the public participates in all aspects of the process.