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. Author manuscript; available in PMC: 2013 May 5.
Published in final edited form as: J Health Care Poor Underserved. 2013 Feb;24(1):27–35. doi: 10.1353/hpu.2013.0007

Table 1.

Recruitment Log Reasons for Participation or Refusal

Reason for
Enrollment In ICH
Study
Reason for Refusal
in ICH Study
Reason For
Refusal in
Genetics Study
To benefit others Patient/LAR not interested in research Family refusal re poor prognosis
To benefit self Claustrophobia/dislike of MRI/study intervention Family refusal re uncomfortable deciding for patient
Family member wants me to consent Patient/LAR does not want to make time commitment Dislike of procedure/needles
Other/Unknown; Specify __________ No direct benefit to patient Other (please describe):
Patient/LAR too tired or overwhelmed
Privacy concerns/release of PHI
Patient/LAR refusing due to poor prognosis
Patient moving out of DC/MD/VA area
Patient enrolled in competing study