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. Author manuscript; available in PMC: 2014 Feb 1.
Published in final edited form as: J Adolesc Health. 2012 Jul 15;52(2):164–169. doi: 10.1016/j.jadohealth.2012.05.011

Table 3.

Revisions Based on Feedback

Item Revision: 12-14 Year Olds Revision: 15-18 Year Olds
I would like information about
how my cancer treatment can
affect my ability to have children		 I would like information about specific
factors that might affect my ability to
have children.		 I prefer to learn about how my cancer
treatment can affect my ability to have
children by --
I feel like I can talk to my parents
about my ability to have a baby in
the future.		 I feel like I can talk to someone about
my ability to have a baby in the future.		 I feel like I can talk to someone about my
ability to have a biological baby in the
future.
I would like to have a baby. I’ve thought about having children in
the future.		 I’ve thought about having biological
children in the future.
If I cannot have a baby I would
be --.		 If I cannot have a baby I will feel
disappointed.		 If I cannot have a biological baby I will
feel--.
I feel frustrated that I might not
be able to have a baby in the
future if I were diagnosed with
cancer.		 No Change Remove Question
If I cannot have a baby one day in
the future I would blame my
cancer.		 If I cannot have a baby one day in the
future I would have feelings of blame.		 If I cannot have a biological baby one
day in the future I would relate it to
having cancer.
If I cannot have a baby, I would
blame my doctor or nurse.		 If I cannot have a baby I would be
angry at the doctor if I wasn’t told
beforehand.		 If I cannot have a biological baby one
day in the future I would look for
someone to blame.
I’m worried about having a baby
in the future because I might get
sick or get cancer again.		 I am worried about getting cancer again,
and how that would affect me if I’m a
parent.		 I’m worried about having a biological
baby in the future because I might get
cancer again.
I’m worried about having a baby
in the future because my baby
might get sick or get cancer.		 I’ve thought about my future baby
getting cancer.		 I’ve thought about my future biological
baby getting cancer.
I feel like I have control over my
ability to have a baby in the
future.		 I feel like there are things I can do now
to help me be able to have a baby in the
future.		 I would be interested in knowing about
things I can do now to help me be able to
have a biological baby in the future.