Table 1.
Background characteristics of the focus group participants, the respondents to the importance questionnaire and the respondents to the experience questionnaire
| |
Focus group |
Importance questionnaire |
Experience questionaire |
|||
|---|---|---|---|---|---|---|
| N | % | N | % | N | % | |
|
Age (years): |
|
|
|
|
|
|
| 18-24 |
0 |
0 |
3 |
0.9 |
2 |
0.2 |
| 25-34 |
1 |
4.2 |
1 |
0.3 |
9 |
1.2 |
| 35-44 |
1 |
4.2 |
13 |
4.1 |
32 |
4.4 |
| 45-54 |
9 |
37.5 |
38 |
11.8 |
89 |
12.3 |
| 55-64 |
9 |
37.5 |
81 |
25.2 |
204 |
28.1 |
| 65-74 |
3 |
12.5 |
113 |
35.2 |
227 |
31.3 |
| 75 or older |
1 |
4.2 |
72 |
22.4 |
163 |
22.5 |
|
Gender: |
|
|
|
|
|
|
| male |
8 |
33.3 |
167 |
52.0 |
333 |
46.1 |
| female |
16 |
66.7 |
154 |
48.0 |
389 |
53.9 |
|
Highest education: |
|
|
|
|
|
|
| none |
0 |
0 |
7 |
2.3 |
11 |
1.6 |
| Primary education (1) |
0 |
0 |
26 |
8.5 |
59 |
8.4 |
| Lower secondary education (2) |
1 |
4.2 |
63 |
20.7 |
158 |
22.4 |
| Upper secondary education (3) |
1 |
4.2 |
64 |
21.0 |
167 |
23.7 |
| Post-secondary non-tertiary education (4) |
3 |
12.5 |
37 |
12.1 |
85 |
12.1 |
| Short cycle tertiary education (5) |
5 |
20.8 |
27 |
8.9 |
69 |
9.8 |
| Bachelor (6) |
7 |
29.2 |
59 |
19.3 |
111 |
15.8 |
| Master/Doctoral (7 or higher) |
7 |
29.2 |
21 |
6.9 |
32 |
4.6 |
|
Experienced health: |
|
|
|
|
|
|
| excellent |
2 |
11.1 |
18 |
5.7 |
46 |
6.4 |
| very good |
3 |
16.7 |
57 |
18.0 |
102 |
14.2 |
| good |
6 |
33.3 |
172 |
54.3 |
367 |
51.0 |
| reasonable |
7 |
38.9 |
54 |
17.0 |
169 |
23.47 |
| poor |
0 |
0 |
16 |
5.1 |
36 |
5.0 |
|
Tumour type (more than 1 answer possible) |
|
|
total 408 |
|
total 732 |
|
| Digestive tract |
6 |
17.1 |
58 |
14.2 |
205 |
28 |
| Lower respiratory tract |
3 |
8.6 |
61 |
15.0 |
67 |
9.2 |
| Breast |
9 |
25.7 |
45 |
11.0 |
171 |
23.3 |
| Male reproductive organs |
1 |
2.9 |
79 |
19.4 |
153 |
20.9 |
| Skin |
1 |
2.9 |
43 |
10.5 |
70 |
9.6 |
| Blood, bone marrow and lymph nodes |
7 |
20.0 |
29 |
7.1 |
45 |
6.1 |
| Urinary tract |
2 |
5.7 |
13 |
3.2 |
9 |
1.2 |
| Female reproductive organs |
3 |
8.6 |
16 |
3.9 |
73 |
10.0 |
| Head and neck |
1 |
2.9 |
16 |
3.9 |
4 |
0.5 |
| Central nervous system |
|
|
0 |
0 |
2 |
0.3 |
| Bone or soft tissue |
|
|
4 |
1.0 |
12 |
1.6 |
| Endocrine glands |
1 |
2.9 |
3 |
0.7 |
4 |
0.5 |
| Eye and orbit |
1 |
2.9 |
2 |
0.5 |
3 |
0.4 |
|
Treatment received (more than 1 answer possible) | ||||||
| surgery |
21 |
45.7 |
230 |
44.6 |
492 |
46.9 |
| chemotherapy |
11 |
23.9 |
115 |
22.3 |
141 |
13.4 |
| radiotherapy |
12 |
26.1 |
125 |
24.2 |
257 |
24.5 |
| hormone treatment |
2 |
4.3 |
44 |
8.5 |
127 |
12.1 |
| immune therapy |
|
|
2 |
0.4 |
32 |
3.1 |
|
Treating specialist |
|
|
|
|
|
|
| surgeon |
13 |
19.7 |
|
|
|
|
| medical specialist/oncologist |
13 |
19.7 |
|
|
|
|
| radiologist/radiotherapist |
8 |
12.1 |
|
|
|
|
| oncology nurse |
5 |
7.6 |
|
|
|
|
| nurse practitioner |
3 |
4.5 |
|
|
|
|
| psychologist/social worker |
6 |
9.1 |
|
|
|
|
| general practitioner |
12 |
18.2 |
|
|
|
|
| physical therapist |
2 |
3.0 |
|
|
|
|
| dietitian |
3 |
4.5 |
|
|
|
|
| dermatologist |
1 |
1.5 |
|
|
|
|
|
Stage of treatment |
|
|
|
|
|
|
| tests to acertain diagnosis |
|
|
4 |
1.3 |
13 |
1.9 |
| diagnosis known, treatment starts |
|
|
4 |
1.3 |
8 |
1.2 |
| during treatment |
|
|
68 |
22.2 |
158 |
22.9 |
| no further treatment possible |
|
|
7 |
2.3 |
14 |
2.0 |
| non-curative treatment |
|
|
31 |
10.1 |
69 |
10.0 |
| checks after treatment |
|
|
168 |
54.9 |
374 |
54.1 |
| treatment and checks after treatment are finished |
|
|
15 |
4.9 |
42 |
6.1 |
| I don’t know (anymore) | 9 | 2.9 | 13 | 1.9 | ||
Educational levels were described using the International Standard Classification of Education (ISCED) categories (one through seven).