Table 5.
Improvement scores for, ten questions with the highest improvement score and ten questions with the lowest improvement score
| Question | Average importance score | % negative experiences | Improvement score |
|---|---|---|---|
|
Ten highest improvement scores | |||
| If your cancer is heritable, was examination of your relatives discussed? |
3.35 |
69.34 |
2.33 |
| After completion of the treatment, were you called at home within a week by a healthcare professional to discuss how you were doing? |
2.81 |
71.71 |
2.01 |
| Did you receive information regarding participation in medical research? |
2.76 |
72.10 |
1.99 |
| After completion of the treatment, did you receive information regarding the possibilities of care for your emotions? |
2.86 |
66.18 |
1.89 |
| Were you informed if the waiting time was longer than expected |
2.80 |
63.30 |
1.77 |
| Were multiple appointments in this hospital planned for the same day? |
3.25 |
53.21 |
1.73 |
| During aftercare, were you offered help with problems surrounding your feelings? |
2.86 |
57.32 |
1.64 |
| Did healthcare professionals inform you about patient organisations? |
2.53 |
63.35 |
1.61 |
| During aftercare, were you offered help with questions regarding getting back into your normal daily routine? |
2.76 |
57.75 |
1.59 |
| If your cancer is heritable, are you regularly checked for any new tumours? |
3.63 |
41.90 |
1.52 |
|
Ten lowest improvement scores | |||
| Were the doctors polite to you? |
3.08 |
1.93 |
0.06 |
| Were the nurses polite to you? |
2.98 |
2.21 |
0.07 |
| Were doctors and nurses aware of your situation? |
3.60 |
2.06 |
0.07 |
| Did the doctors and nurses treat you in a skilful manner? |
3.44 |
2.6 |
0.09 |
| Was written information clear? |
3.20 |
2.87 |
0.09 |
| Did healthcare professionals give you contradictory information? |
3.50 |
2.63 |
0.09 |
| Did the information you received beforehand correspond well with what happened during investigation and treatment? |
3.33 |
3.54 |
0.12 |
| Did the doctors take you seriously? |
3.49 |
3.45 |
0.12 |
| Did the doctor give you the test results personally? |
3.40 |
3.57 |
0.12 |
| Did you trust the doctors and nurses? | 3.63 | 3.46 | 0.13 |
For each question the average importance score is shown as measured in the importance questionnaire (1 is lowest, 4 is highest), the percentage of negative experiences (the two most negative categories were taken together, for instance ‘none’ and ‘some’ or ‘never’ and sometimes’).