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. 2013 May 9;3(5):e002241. doi: 10.1136/bmjopen-2012-002241

Table 2.

Main and subcategories from the analysis of patient contributions to OMERACT meetings and outcome research since 2002

Impact of a decade of patient involvement in OMERACT
Research agenda Outcome core sets Patient-reported outcomes Culture of OMERACT Consequences outside OMERACT
  • Generating challenging ideas

  • Identification of patient-relevant research topics:

    • Well-being

    • Fatigue

    • Sleep disturbance

    • Flares

  • Identification of patient relevant domains to include in core sets for clinical trials:

    • Fibromyalgia

    • Psoriatic Arthritis

    • Vasculitis

    • Gout

    • MRI

    • MCID

    • Remission

  • Acceptable, understandable and feasible outcome measures for

    • Monitoring adverse events

    • Work productivity

    • Flares

    • Psychosocial interventions

  •  ▸ Attitudes

  • Communication

  • Perceptions

  • Motivation

  • Relational empowerment

  • Personal benefits

  • Local initiatives

  • Local and national networks of partners

  • EULAR

  • COMET

  • ISDM

Reality check

OMERACT, Outcome Measures in Rheumatology.