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. Author manuscript; available in PMC: 2013 Jul 1.
Published in final edited form as: Contemp Clin Trials. 2012 Mar 2;33(4):647–656. doi: 10.1016/j.cct.2012.02.012

Figure 2. The Contact Registry as a Facilitator of Patient-Research Communications.

Figure 2

Patients provide data on their disease and their preferences for health information and research participation; in turn, they receive customized information and study invitations. Researchers provide data on research opportunities and can receive (aggregate) information on patient chracteristics, and detailed patient information if patients have authorized. Patient advocacy groups and public resources provide authoritative and useful information that can benefit patients and keep them engaged in the registry.