Table 3.

Summary of survey and focus group results on scope of permission for future use options for biobanking

Method	Survey (n = 751), % preferred (95% CI)	Focus groups (n = 48), % preferred	Common likes	Common concerns
Broad	41 (37–45%)	54	Allows for flexibility in research; logical given uncertainty of future research; logistically easier; spurs research and research output	Minimally informative; disallows individual control over sample and information use
Categorical	25 (21–28%)	21	Provides some level of information and choice over future sample and information use; can participate in research that has personal meaning	Categorical choices may be confusing or misunderstood; could hinder research; logistically complicated; people may not feel qualified to make selections
Study specific	29 (25–32%)	21	Promotes knowledge, choice and control over research participation; may facilitate return of research results	Recontact fatigue; may hinder research if subjects cannot be reached or if not enough people consent to a particular study; resource intensive and impractical
No preference	4 (3–6%)	4