Table 3.
Demographic Characteristics of Focus Group Participants by Site
| Characteristics | Chicago N=9 % (n) |
Dallas N=11 % (n) |
Atlanta N=31 % (n) |
Total N=51 % (n) |
|
|---|---|---|---|---|---|
| Gender | Female | 55.5 (5) | 63.6 (7) | 77.4 (26) | 74.5 (38) |
| Male | 44.5 (4) | 36.4 (4) | 16.1 (5) | 25.5 (13) | |
| Focus Group | Adult | 55.5 (5) | 81.8 (9) | 87.1 (27) | 80.4 (41) |
| Youth | 44.5 (4) | 18.2 (2) | 12.9 (4) | 19.6 (10) | |
| Child’s Type of SCD | SS (HbSS) | 22.2 (2) | 72.7 (8) | 74.2 (23) | 64.7 (33) |
| SC (HbSC) | 11.2 (1) | - | 16.1 (5) | 13.7 (7) | |
| Sβ-thalassemia | 22.2 (2) | - | 9.7 (3) | 9.8 (5) | |
| Unknown | 44.4 (4) | 27.3 (3) | - | 11.8 (6) | |
| Number of Episodes* Last Year | 0–1 | 11.1 (1) | - | - | 2.0 (1) |
| 2–5 | 66.7 (6) | 81.8 (9) | 61.3 (19) | 66.7 (34) | |
| 6–10 | - | 9.1 (1) | 25.8 (8) | 17.6 (9) | |
| 11 or more | 22.2 (2) | 9.1 (1) | 12.9 (4) | 13.7 (7) | |
| Employment Status (Participant) | Employed | 66.7 (6) | 90.9 (10) | 71.0 (22) | 74.5 (38) |
| Unemployed | 33.3 (3) | 9.1 (1) | 29.0 (9) | 25.5 (13) | |
| Employment Status (Partner/Youth’s Father) | Employed | 44.4 (4) | 18.2 (2) | 51.6 (16) | 43.1 (22) |
| Unemployed | - | - | 6.5 (2) | 4.0 (2) | |
| Other | 55.6 (5) | 81.8 (9) | 41.9 (13) | 52.9 (27) | |
| Insurance Status | Insured | 100.0 (9) | 100.0 (11) | 96.8 (30) | 98.0 (50) |
| Uninsured | - | - | 3.2 (1) | 2.0 (1) | |
| Distance from Medical Facility (miles) | 1–30 | 100.0 (9) | 81.8 (9) | 74.2 (23) | 80.4 (41) |
| 31–60 | - | 18.2 (2) | 22.6 (7) | 17.6 (9) | |
| More than 60 | - | - | 3.2 (1) | 2.0 (1) |
*
Number of times child was hospitalized or had to seek treatment from any clinical settings for complications due to sickle cell disease (SCD) such as pain crisis, respiratory problems, stroke, etc.