Table 5.

Solutions to help overcome technical barriers

• Training of patients and their parents in the proper management of prophylactic or home infusion regimens including:

• Bleed recognition

• Dosage calculation

• Preparation, storage, and administration of clotting factor

• Aseptic technique

• Performing venipuncture or accessing the central venous access device

• Record-keeping (to track bleeding episodes and infusion schedules)

• Biohazard cleanup (including needles and spills)10,55

• Patients or their parents must be trained on the proper maintenance of venous access lines to avoid infections

• Follow-up and repeated education on proper system operation

• Patients should clean the injection site with soap and water before administration