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. 2013 Jun;16(6):680–685. doi: 10.1089/jpm.2012.0198

Table 5.

Acceptability of Program Content Comments

Session One: focuses on the last few months of life
I appreciate knowing what to anticipate, especially the probability of my husband not talking near the end; I have talked to our daughters about this.
I loved this; I listened to all the extra parts last night when I couldn't sleep. I feel so much better now, knowing what to expect. I don't feel as scared anymore.
Even though I am a nurse, I don't deal with dying people, so this was very helpful for me to review what happens.
This is great; even as a medical assistant, I am not trained to take care of my husband. He has had a lot of problems with swallowing and it makes so much more sense now; I wish someone had explained this to me a while ago. I also thought it would be better to not involve our son, but he had to help me change the leg dressing because I can't lift his leg anymore; my son was incredible and I can see how much it helped him to be involved; thank you for this suggestion!
I wished I had known these things two years ago when I started taking care of her; this is really helpful to me. I had no idea of what to do and how to help my wife; thank you!
This was simple and straightforward, very helpful and informative. It verifies what I have been seeing in my mom. It is also nice to know that I am not alone.
I feel better about asking for help from the hospice nurse now.
Session Two: focuses on the final days to week of life
I especially liked that I could read and listen at the same time because my mind wanders. I also liked to be able to take notes and keep the book.
I need to know this but it is a little scary; I am glad that the hospice nurse will be here to help me.
I'm not sure about this section, but I know that I need to know it to help my wife. I just hope it will be a while before this happens.
I can't remember all of this, so I am glad to get to keep the book.
I learned I am not alone and that is nice to know.
I am really glad to know what to expect so I am not surprised
I never read the blue book from the hospice; I really like the CD with this book.
This is really great information; I am glad we are not there yet, but this will be very helpful for me and for my family.