Table 4.

Interview Guide for Parents and Health Care Professionals

Interview guide for parents

• What motivated you to accept the invitation to participate in the IPPC trainings?

• How did your expectations of the training experience compare with the reality of the training experience for you?

• What have you found to be the different challenges in participating in the trainings?

• What different things have you found to be meaningful in your training experiences?

• How has the hospital staff responded to your presence and sharing in the trainings?

• What are your thoughts about having staff present in the training with whom you are familiar from your child's treatment?

• What would you say to a parent considering participation in an IPPC training for the first time?

• What would you say to health care educators about the possible inclusion of parents in future education efforts for hospital staff?

• How has your participation in the training affected your experience of grieving for your child?

• What have you learned in your training experiences about health care professionals and about yourself?

Interview guide for health care professionals

• What motivated you to accept the invitation to participate in the IPPC trainings?

• What were your initial thoughts and concerns when you learned that parents would be involved in the training?

• What challenges were presented by having parents present and participating in the trainings?

• What was meaningful and helpful about having parents present and participating in the trainings?

• How were you and your work affected by the presence and sharing of parents in the training?

• What are your thoughts about having a parent involved with whom you are familiar because of your involvement in his or her child's treatment?

• What are your thoughts about parents being involved in other staff education and trainings here at the hospital?

IPPC, Initiative for Pediatric Palliative Care.