Table 1.
Participant Demographics for Focus Groups, Cognitive Interviews, and Physical Function Bank Studies
| Focus Groups (N=23)* |
Cognitive Interviews (N=44)* |
Physical Function Bank (N=758) |
||
|---|---|---|---|---|
| Age | ||||
| mean | 45 | 46 | 54 | |
| SD | 11 | 17 | 14 | |
| Female | 18 (78%) | 26 (59%) | 467 (62%) | |
| White | 22 (96%) | 37 (84%) | 639 (84%) | |
| High school or > | 21 (91%) | 38 (86%) | 710 (94%) | |
| Employed (part-time or full-time) | 4 (17%) | 18 (41%) | Unknown | |
| Primary Condition | ||||
| Acute bronchitis | 0 | 1 (2%) | 0 | |
| Amputation/limb deficiency | 1 (4%) | 0 | 0 | |
| Arthritis | 1 (4%) | 10 (23%) | 216 (29%) | |
| Blindness/low vision | 0 | 1 (2%) | 0 | |
| Brain injury (including stroke) | 1 (4%) | 6 (14%) | 0 | |
| Cerebral palsy | 2 (9%) | 1 (2%) | 0 | |
| Chronic fatigue syndrome | 0 | 1 (2%) | 0 | |
| Crohn’s disease | 0 | 1 (2%) | 0 | |
| Diabetes mellitus | 0 | 1 (2%) | 0 | |
| Hearing loss | 0 | 1 (2%) | 0 | |
| Hereditary nerve disorder | 1 (9%) | 1 (2%) | 0 | |
| HIV | 0 | 1 (2%) | 0 | |
| Multiple chemical sensitivities | 1 (4%) | 0 | 0 | |
| Multiple sclerosis | 5 (22%) | 4 (9%) | 274 (36%) | |
| Neuromuscular disease | 1 (9%) | 1 (2%) | 0 | |
| Post-polio syndrome | 2 (9%) | 1 (2%) | 0 | |
| Spinal cord injury | 7 (30%) | 6 (14%) | 268 (35%) | |
| Systemic lupus | 0 | 1 (2%) | 0 | |
| Thalassemias (hemolytic anemia) | 0 | 1 (2%) | 0 | |
| Vestibular dysfunction | 1 (4%) | 0 | 0 | |
| Other | 0 | 4 (9%) | 0 | |
*
Two individuals participated in both focus groups and cognitive interviews.