Table 2. Symptom control: comparison of bereaved relatives' views in the hospice as opposed to the hospitala.
Hospice (1), (n=109) |
Hospital+LCP (2), (n=78) |
Hospital−LCP (3), (n=68) |
|
|||||||
---|---|---|---|---|---|---|---|---|---|---|
n | % | 95% CI | n | % | 95% CI | n | % | 95% CI | P-valueb | |
In your opinion, during the last 2 days, did she/he appear to be in pain? (missing n=2, 0.8%) | ||||||||||
Yes, all of the time | 9 | 8.3 | 4.2–14.5 | 6 | 7.7 | 3.3–15.2 | 10 | 14.7 | 7.8–24.5 | NS |
Yes, some of the time | 44 | 40.4 | 31.5–49.7 | 41 | 52.6 | 41.6–63.4 | 26 | 38.2 | 27.4–50.1 | |
No, she/he did not appear to be in pain |
54 |
49.5 |
40.3–58.8 |
31 |
39.7 |
29.4–50.8 |
32 |
41.7 |
35.5–58.8 |
|
In your view, did the doctors and nurses do enough to help relieve the pain? (missing n=5, 2.0%) | ||||||||||
Yes, all of the time | 78 | 72.2 | 62.6–79.4* | 46 | 59.0 | 47.9–69.4** | 23 | 33.8 | 23.4–45.6 | <0.0001 |
Yes, some of the time | 8 | 7.4 | 3.5–13.4* | 13 | 16.7 | 9.7–26.1 | 18 | 26.5 | 17.1–37.8 | |
No, not at all | 0 | 0.0 | 0.0–2.3* | 3 | 3.8 | 1.1–9.9 | 7 | 10.3 | 4.7–19.2 | |
Not applicable, she/he was not in pain |
21 |
19.4 |
12.7–27.4 |
14 |
17.9 |
10.7–27.6 |
19 |
27.9 |
18.4–39.4 |
|
In your opinion, during the last 2 days, did she/he appear restless? (missing n=5, 2.0%) | ||||||||||
Yes, all of the time | 8 | 7.3 | 3.5–13.4* | 7 | 9.0 | 4.1–16.8 | 17 | 25.0 | 15.9–36.2 | <0.0001 |
Yes, some of the time | 52 | 47.7 | 38.5–57.0 | 35 | 44.9 | 34.2–55.9 | 38 | 55.9 | 44.0–67.2 | |
No, she/he did not appear to be restless |
46 |
42.2 |
33.2–51.6* |
35 |
44.9 |
34.2–55.9** |
12 |
17.6 |
10.0–28.0 |
|
In your view, should more have been done by the doctors and nurses to help relieve his/her restlessness? (missing n=14, 5.5%) | ||||||||||
Yes | 11 | 10.2 | 5.5–16.8* | 15 | 19.5 | 11.7–29.0 | 27 | 39.7 | 28.7–51.6 | <0.0001 |
No | 50 | 46.3 | 36.7–55.2 | 30 | 39.0 | 28.2–49.5 | 26 | 38.2 | 27.4–50.1 | |
Not applicable, she/he was not restless |
42 |
38.9 |
29.8–47.9 |
29 |
37.7 |
27.1–48.2** |
11 |
16.2 |
8.9–26.3 |
|
In your opinion, during the last 2 days, did she/he appear to have a ‘noisy rattle' to his/her breathing? (missing n=10, 3.9%) | ||||||||||
Yes, all of the time | 22 | 20.2 | 13.5–28.4* | 10 | 12.8 | 6.8–21.6 | 2 | 2.9 | 0.6–9.1 | NS |
Yes, some of the time | 41 | 37.6 | 28.9–46.9 | 30 | 38.5 | 28.2–49.5 | 33 | 48.5 | 36.9–60.3 | |
No, she/he did not appear to have a ‘noisy rattle' to the breathing |
43 |
39.4 |
30.7–48.8 |
35 |
44.8 |
34.2–55.9 |
29 |
42.6 |
31.4–54.5 |
|
Should more have been done to relieve the ‘noisy rattle'? (missing n=27, 10.6%) | ||||||||||
Yes | 18 | 16.5 | 10.5–24.3 | 12 | 15.4 | 8.7–24.6 | 11 | 16.2 | 8.9–26.3 | NS |
No | 42 | 38.5 | 29.8–47.9 | 23 | 29.5 | 20.3–40.1 | 19 | 27.9 | 18.4–39.4 | |
Not applicable, there was no ‘noisy rattle' to his/her breathing |
39 |
35.8 |
27.3–45.1 |
35 |
44.9 |
34.2–55.9 |
29 |
42.6 |
31.4–54.5 |
|
In your opinion, during the last 2 days, did she/he appear breathlessness? (missing n=8, 3.1%) | ||||||||||
Yes, all of the time | 16 | 14.7 | 9.0–22.2 | 11 | 14.1 | 7.7–23.1 | 21 | 30.9 | 20.9–42.5 | 0.0006 |
Yes, some of the time | 35 | 32.1 | 23.9–41.3 | 24 | 30.8 | 21.4–41.6 | 28 | 41.2 | 30.1–53.0 | |
No, she/he did not appear breathless |
54 |
49.5 |
40.3–58.8* |
40 |
51.3 |
40.3–62.2** |
18 |
26.5 |
17.1–37.8 |
|
In your view, should more have been done to help relieve the breathlessness? (missing n=27, 10.6%) | ||||||||||
Yes | 6 | 5.6 | 2.3–11.0* | 11 | 14.1 | 7.7–23.1 | 16 | 23.5 | 14.7–34.6 | <0.0001 |
No | 35 | 32.4 | 23.9–41.3 | 20 | 25.6 | 17.0–36.1 | 28 | 41.2 | 30.1–53.0 | |
Not applicable, she/he was not breathless | 55 | 50.9 | 41.2–59.7 | 40 | 51.3 | 40.3–62.2** | 17 | 25.0 | 15.9–36.2 |
Abbreviations: CI=confidence interval; LCP=Liverpool Care Pathway for the Dying Patient.
Confidence intervals with * indicate significant differences between columns 1 and 3; confidence intervals with ** indicate significant differences between columns 2 and 3; percentages do not always add up to 100% due to missing responses (total number of missing responses stated within table).
Comparisons between groups were conducted using χ2 testing and additional testing using the Cochran–Mantel–Haenszel test if question had ordinal response options. Bold values indicate the statistically significant results.